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Can't get over this fatigue

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Crohn's Disease
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Posted 3/8/2011 6:09 PM (GMT 0)
I do not know what else I can do.  I am in bed 8-10 hours a night trouble falling asleep but then when I am asleep it isnt too bad most nights.  Getting up tho is a chore I have been awake for 2 hours but just couldn't bring myself to get up.  now That I am up I have turned this machine on and had a dash to the bathroom and feel like I need a nap. 

I am so sick of how this DD  makes me feel.   I know when I have to get up early and set my alarm for something I wake up 2 hrs before it goes off and cant fall back to sleep..just cant win i guess

Posted 3/8/2011 6:14 PM (GMT 0)
Sleeping is sometimes darn hard work. Hopefully my flare is settling down and will be settled enough to go back to work beginning of April, however before then I need to sort out sleep pattern as currently go to bed at 3am and sleep through to 8am. Then usually have nap in afternoon about 3pm as can't keeo eyes open.

This all started when in major flare few months ago and had to empty ileo bag every 45 mins day and night, only time it slowed down was about 3am for 2 hours so my body has adjusted to this sleep/wake time. The black bags under my eyes are so big and dark I could use them for a weekend away! lol
Posted 3/8/2011 6:33 PM (GMT 0)
Fatigue is one of my worse problems. I'm so worn out all the time, and nothing I do seems to alter it!
i understand how you feel, but have no words of wisdom for you, in fact I need some words of wisdom
myself :(
Posted 3/8/2011 10:26 PM (GMT 0)
I am in remission and am fatigued all the time. I so feel your pain. Wish I had a magic answer for you, but I don't, so here is a HUG!
Posted 3/8/2011 11:42 PM (GMT 0)
Thanks I just dont know what to do. I know I have to start dinner soon but I dont really have much energy to get out of my chair at the moment. My B12 test showed I was at 222 (and that was 2 days after when I should have taken my shot) my GP wouldnt script it out to me last month until I had the labs...I spoke with my GI he rather have me on it all the time (once a month) since my surgeries even with my level in the "normal" range granted it is on the lower side of norm bineg that normal is 185- 850 he said there is no way to OD on it and the body can store it as well.

I just want to take a nap but I have too many things to do. THis week I havent even done any housework vesides laundry on Sunday.
Posted 3/9/2011 12:52 AM (GMT 0)
You're right 220 is still low. My doctor likes mine to be above 300, that's why I do my shots every 2 weeks.
But I have to say I don't see any change in my fatigue even with the shots:(
Posted 3/9/2011 11:30 AM (GMT 0)
My friends always say stuff like "How are you tired? You didn't do anything.." or "You got up at 4 in the afternoon, dude!" when I tell them I'm tired. Or at least, they used to. As I've been hanging out at their house more, I think they've become more aware of how taxing this disease is. Pooping is hard labor. Walking is endurance training. Sitting is torture. Is it any wonder we're tired?

I find it's best to assume I'm going to need an hour from when I get up to when I need to do something... because that's when I finally get out of the "bleeeeeeeeh" mode and start getting interested in whats going on. Then I tack another 15 minutes onto that if it's an appointment, just in case traffic is bad or something. Then I add the actual travel time and whatnot.
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