pyoderma gangrenosum

I just found out I had one on my stomach. My doctor put a steriod shot in it yesterday. I'm just wondering if this really works.

Thanks Nanners. I am also wondering how you can tell if you have any on your inside organs. Please any help.

I didn't have any luck with steriod shots, and honestly you need to find a really smart doctor to help you with PG. It's a really tough diagnosis. See if the shot works at all and make sure to keep it super clean. Super clean. Right now I am personally using electrolyzed water to do the cleaning and it's helping it heal. If you want to know more let me know. http://www.innovacyn.com/

as far as internal PG, I saw an article the other day which says it's usually only linked to Wegners so you should get tested for that. If it's any reassuarance, PG is astronomically rare, and I'd wager that internal PG is a rare subset of that, it would be more likely to get struck by lightening. Maybe twice.
here's the article abstract: http://www.ncbi.nlm.nih.gov/pubmed/21397890?dopt=Abstract

are you still on imuran?

*activated your links*

Post Edited By Moderator (Nanners) : 3/22/2011 8:13:17 AM (GMT-6)

I use vertericyn: http://www.vetericyn.com/ it's the same as microcyn for humans http://www.oculusis.com/
if you want to be amazed log into the mexico part of the site in english and look at the diabetic ulcer improvements.

Vetericyn is the same as their human stuff but much cheaper. plug your zip code into the product finder - I can get it locally, and have also gotten it on amazon. I soak my wound with it on gauze at least once a day. easy, harmless and efficient. It elevated the amount of oxygen in the wound for 8 hours or so after. that's a Big Deal. Daily I also I use manuka/jellybrush 20+ honey.

As a matter of fact, after exhausting all the topical drugs, I only use topical steroids on the weekend (clobetesol)) and manuka honey and the vertricyn during the week. I use straight vasaline on gauze to cover the manuka. I've been through a lot of drug related reversals (antibiotics, tacrolimus gel... and too much steriods) and this works the best. this is the exact manuka I use is this exactly from this exact vendor
cgi.ebay.com/Manuka-Honey-Sterile-Wound-Management-Active-ULF-20-/160566550165?pt=LH_DefaultDomain_0&hash=item2562831e95

I can tell you this is what works for me. Last year we tried a bunch of stuff that was more "medical" daily clobetesol, minocycline, FK504/tacrolimus, and I lost a year of healing because the wound went backwards instead of forwards. If you go to a university hospital - they'll try to put you on cellcept. I've not tried that because I loves my LDN.

My wound is healing well, slow but sure. But this is what works for me - and it certianly will do you no harm. I photograph ever 3-4 days and make sure I'm headed in the right direction. You need a good doc. I haven't put soap on my wound ever, it would freak me out. You need to be gentle. I also soak in the bath with a lot of epsom salts every day.

There are a lot of varieties of PG, slow, fast, and all things in between but there is one universal truth, the earlier and better you treat it at the start the better your chances of fast healing. The current prevailing medical wisdom is to hit it very hard, very early. I missed out on that -- late into the game because it took a loooong time to get a DX. I hope you find a fabulous doc, because that would really help you. please think about it. all the best.

I'll check in on you here. I'm sorry it took me so long to write back.

Post Edited (janicea) : 3/31/2011 8:24:45 PM (GMT-6)