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SO TIRED!

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Crohn's Disease
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Posted 3/29/2011 5:20 PM (GMT 0)
I really think this is one of the hardest things for me right now. This is the worst flare I have had since my son was born and to not be able to play with him and take him places because all I want to do is lay on the couch is maddening. It makes me feel like a horrible mom. We are usually always on the go. Going new places and playing all day. The past week, I've mostly laid on the couch and had Disney Channel on. Little man has been really upset and keeps trying to get me to take him out. I feel so bad and so annoyed that I can't even gather the strength to go for a walk with him.

I want my energy back!!!!!

I also would love to not be in pain but, eh, I am use to that... plus the pain meds help some.
Posted 3/29/2011 6:16 PM (GMT 0)
Annee, I think this is the one thing the gets to us all. I wish I could find someone who could bottle some
for us, so we could take a slurp when needed. I want my energy back too!!!
Posted 3/29/2011 7:53 PM (GMT 0)
(((Annee))) I am so sorry you are feeling so rough. I am in remission and I am still tired too all the time. Its sucks because its like all my husband sees when I get home from work is me asleep on the couch. We do understand. Hugs!
Posted 3/29/2011 8:49 PM (GMT 0)
Oh to have some energy!

I want to share a crohnie mom story with you though to hopefully ease your "Mom Guilt". Last month I was in the hospital and was talking about one time I was in for an extended time with my daughter (23 now) and how all I wanted to do was come home. I had been in the hospital for 3 weeks and my girls were 8 and 5. It was over Mother's Day and I was miserable with an NG tube and thought I would scare them, so I wouldn't let them come see me. I just wanted to go home and see my babies. She looked at me and said, "Mom, I don't remember this at all."

So as much as your son wants to go out and play today, in the big picture of his life, he won't remember the times that you were too sick to go out. He will remember that you were his Mom. My girls tell me this all the time. Watching a few Disney movies counts as quality time!

I hope you feel better soon. Enjoy some Nemo! Just keep swimming!
Posted 3/30/2011 10:31 PM (GMT 0)
Hi Anne-Wishing you well. Wondering if there's a family member, teenage/college mother's helper, retiree who might come by for an hour or two to hang with you and your son. Perhaps you can sit or lie down while he plays with your guest. A friend of mine has had a retiree from her church come by to do so for her and it has made a world of difference for her kids and for the retiree. Best of luck to you.
Posted 3/31/2011 1:53 AM (GMT 0)
Please be aware also of the possibility of depression due to your illness and the heavy burden of being a Mom. If you think you need it, seek help. Meanwhile I am sending you a little burst of energy from Colorado. I hope it helps :)
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