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remicade works but...

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Crohn's Disease
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Posted 4/2/2011 4:02 PM (GMT 0)
It is true I can see the remicade working. I hardly ever have D anymore, and it have days where I don't go at all - what a difference! But just as it seems the remi has fully kicked in I now am on antibiotics for the first bladder infection I have ever had and now I also have athletes foot! It seems that bacteria and yeast like me now shakehead

Is this just how it goes on remi? Be thankful for the happier intestines and deal with the side effects of a lessened immune system?

Also, my GP knows about the bladder infection...I don't get my next remi until May 3rd and by then will be off antibiotics and also done treatment for my feet. Do you think I need to tell anyone about it now (remi clinci? GI?) or is it okay to just wait until May 3rd and let them know what had happened (of course, I am anticipating no more complications!!)
Posted 4/2/2011 4:34 PM (GMT 0)
I would def tell your GI or the remi clinic just as a precaution. Maybe they know something that your GP or you don't know. I love remicade personally. It used to help me tremendously. Unfortunately I built up antibodies to it, so it doesn't work for me. Yes, remicade does have side effects on your body like that. You should take supplements that help the balance of your immune system. This is what I used to do. The remicade would help me tremendously and I would never get sick! It USED to be a miracle for me. Wish it still was.
Posted 4/3/2011 4:35 AM (GMT 0)
hey blue. i also am on remicade and i have been on the treatments for a couple months or so (crohn's 2006) and its funny you say you are having urinary problems because i too have been having urinary problems...i just recently have had a cystoscopy done and it turns out i have something called interstitial cystitis an inflammatory bladder disorder that can be tied to crohn's. I talked to my GI doc about these new findings and they are talking about taking me off the remicade treatments...anyways so its possible those "side effects" maybe tied to the treatments.
Posted 4/3/2011 3:10 PM (GMT 0)
interesting rocksie! did your problems start after remicade? Are they thinking of taking you off remicade because of the bladder issue? I felt like the antibiotics were helping me a bit, but I am still wanting to pee more than I am used to and it is driving me a bit crazy!
Posted 4/4/2011 3:32 AM (GMT 0)
well its been going on for a while and the pain in my lower stomach (which i thought was just crohn's flare) and the frequent urinating (also getting up 3-4 times a night!) it never burned or anything when i pee'd (so i didnt suspect UTI) but it just progressively got worse its something i have been "dealing with" so i cant really tell you if the remicade caused this. SO, when i went to go see my GI dr. after the cystoscopy i actually saw his PA...she told me that my dr. MIGHT want to take me off the remicade because it could be possible it caused it or is making it worse. im not too sure. she was very unclear about why she thought this but i have an appointment with my actual GI dr. about a week or 2 before my next remicade treatment to disscuss what he thinks. im sort of in the dark about that issue and the PA wasnt really that helpfull..
Posted 7/23/2012 4:44 PM (GMT 0)
Hi Folks,
I also developed a bad bladder problem after using Remicade. The condition is called IC or Interstitial Cystitis. Has anyone else had the same problem.
Posted 3/29/2022 7:29 PM (GMT 0)
Interesting...I seem to have the opposite problem. My IC has been flaring badly for several weeks. I had my Remicade infusion yesterday and this morning the IC is much improved! Could be coincidence, so I am going to track how my IC reacts to future infusions. I have been on Remicade for ten years and it has my rheumatoid arthritis in complete remission.
Posted 3/29/2022 8:58 PM (GMT 0)
This is a pretty old post.... But I will say that I have been struggling with UTIs whole in Remicade for the last 2 years. I use Uqora for UTIs complete system. I supplement it with 2 extra doses if powdered DMannose every day. All if it together seems like it is helping with the UTIs.

I have not been diagnosed with IC. I have gone into acute renal failure 3 or 4 times now with an EGFR in the 30s and 40s. My nephrologist is working with my GI trying to keep me on Remicade.

Hope yours continues to get better. Please let me know how it goes.

Clo
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