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Prednisone Update

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Crohn's Disease
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Posted 4/4/2011 12:50 PM (GMT 0)
I'm on 20 mg of Prednisone for 9 days.  5more days at this dose before I taper to 15mg for 2 weeks then 10 mg for 2 weeks then 5 mg for two weeks.  

I'm feeling somewhat better but don't know if I should expect more. 

Cramps have lessened and if I get them 2 hyosciamine takes away the pain.

Weight loss has stopped.  I have gained about 1 1/2lbs.

Night Sweats have stopped, but sometimes I awaken with gas.

Past 3 days have only had 1 bm as soon as I get up, but less urgency than before.  However it is still very soft, but not D.

I have felt hungry several times.

Have a slight coating on the sides of my tongue in the morning which brushes away.

Have been weepy several times.

My questions to those of you who have been on pred are, by now:

Should my BM be normal without any urgency.

Should all cramps be gone.

Will I continue to see improvement as I continue taking Pred

I continue to take 4 Apriso a day but stopped LDN cream 3 days ago.  Will not start LDN until I am at 10 mg of prednisone

Thanks to everyone for your sharing and caring.  My GI is very stingy with info.

Posted 4/4/2011 2:23 PM (GMT 0)
Sounds like you are doing about as well as to be expected. Nightsweats, gas, more formed stool, hunger, mood swings are all part of the normal side effects of Pred. Pred can cause acid reflux like symptoms too, so that may explain some symptoms too. Good luck!
Posted 4/4/2011 3:43 PM (GMT 0)
glad to hear it seems to be doing what it's suppose to do for you!! I can't take that stuff makes me go mental!
Hugs to you!! I hope it keeps working for ya!
Posted 4/5/2011 1:55 AM (GMT 0)
It does take a little bit for the Pred to work on the inflammation in your body. It's fast, but not instantaneous (if only someone could invent that...haha.). A couple of days into taking the Pred, the cramps and urgency should lessen. Ideally, by the end of 10 days they should be gone when you're ready to step down.

Also when you step down, you'll notice an increase in symptoms and tiredness for a few days until your body adjusts to the new level of Pred.

The med works really well. It was the best thing I ever took the first time I was on it. The second time, it made me completely crazy and I had every bad side effect you could read about...but it helped the Crohn's a bit, so that's all the really matter in the end.
Posted 4/5/2011 11:38 AM (GMT 0)
Thanks for the feedback.
Tooth, I'm glad to know that 10 days is not abmormally long for pred to work. Folks have been telling me pred works in 24-48 hours. I still have some cramping during the day especially first thing in the morning and in the late afternoon. I hope that doesn't increase when I taper down by 5 mg in 3 days. BM as soon as I get up is still very soft but pieces are medium thickness (TMI : )) )
So far side effects have not been troublesome. Our family vacation starts on April 20. I am praying I'll be somewhat stable so I can enjoy the grandkids.
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