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Crohn's Disease
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Posted 5/5/2011 4:37 PM (GMT 0)
 

Thought I would start this late one as Ivy your absence is noted wink   Hope you are ok and not struggling!

Have spent the day cleaning now that everyone has departed, haven't yet finished but it can wait until tomorrow.

Went to GP to get ds' blood/urine test results, his inflammatory markers were high so indicating another flare(just different symptoms this time) so I guess the course of anti-biotics that he was given weren't really needed-no doubt they will  knock the good guys out in his gut again and he'll have problems next week. Went and bought him some more pro-biotics(in readiness) the other day, he usually takes 2 x 2.5 billion but the company now make a super strength 1 x 20 billion so I got those, however I was doing some(never ending) research online and came across a piece re lactobacillus septicaemia which apparently is a potentially fatal disease caused by consumption of pro-biotics in those with lowered immune systems so I am now dithering whether to give them to him. Asked the GP but I guess I didn't make my question too clear because he basically said there was no proof they did any good etc instead of answering whether they could do any harm. Guess we will now have to wait until we see the specialist.

Posted 5/5/2011 5:08 PM (GMT 0)
Wow, Vixen sorry about the unnecessary abx. I'm not on probiotics, so I can't help you there.

Ivy -- hope you're doing okay.

I'm having a hard time getting motivated and have lots to do. Kids are on the mend, but the house is trashed. Mother's Day also snuck up on me. Here's my TLC:

- pick up Rx -- DONE
- laundry -- in progress
- ordered photos for mother's day craft -- DONE
- pick up photos
- make craft
- mail craft ASAP
- scrub floors, up and down
-vacuum
- prep dinner -- DONE
- finish organizing junk cupboard
Posted 5/5/2011 6:46 PM (GMT 0)
Hello all!! Ivy has a bunch of appointments, so thats where she is at.

Vixen, crohnies should be taking at least 10 billion, so young one should be fine. The one I take has 12 billion in it.

Inflamed I don't know how you do all that and take care of babies. Whew, I am tired just reading that.

As for me, I am little concerned, because I have been having bouts of nausea hit me of late. Will wake up in the morning nauseous, puke before work (what fun), take my nausea meds and generally will feel better. But today its seems about the time the meds wear off, the nausea comes back. No good, no good!!

Only thing I need to do today is go by the grocery store. Grandson is coming this weekend so I need to pick up a few things for him. He has got to have his strawberry milk:) Kinda glad he's coming so he and Papi can go for bike rides etc and I can just veg at home.

Hope you all have a good day! Hugs!
Posted 5/5/2011 8:46 PM (GMT 0)
Gail -- not good on the nausea, like you said. At least the meds help, but much better if it would just stay away. Enjoy your grandson. Oh, and don't give me credit for getting a lot done. I just plan to do a lot. If you'll notice, scrub the floor is almost always on the list and gets done only about once a week. Should be doing it now honestly. With a crawler, it really needs to be done more.

I did pick up the photos, and the first stage of the craft is drying. Glue stick time after naps.
Posted 5/5/2011 9:43 PM (GMT 0)
Scrubbed that darn floor! Downstairs at least.
Posted 5/5/2011 10:03 PM (GMT 0)
Nanners, if you ask me, it's time to call the doctor. You can't keep operating while dosed up on anti-nausea meds: those things are terrible, and nausea is draining in itself.

What sort of floor do you have, Inflamed? I never scrub mine: you're making me feel guilty :-).

Vixen, that's scary about the potentially scary bacteria strain. Very scary, actually. I'm pretty sure it's possible to get probiotics that aren't lacto-whatever: perhaps you might be able to find, buy and try those?

I was up much of Wednesday night due to bad pain, which I'm pretty sure was caused by an upsetting psych appt on Wednesday afternoon. Thursday was pretty rough too, so I didn't post here. I just sat and worked on the Scary Paperwork Pile, and had a retro day listening to old music clips on YouTube.

It's Friday morning and I'm not sure how I am yet, but at least I slept, so that's a start.

What craft did you make, Inflamed?

Thanks for starting the tlc thread, Vixen.

Ivy.
Posted 5/6/2011 1:34 AM (GMT 0)
Ivy -- sorry for your rough days and hard appointment. Glad you at least slept. We have wood down. I can't just mop it because I have kids who throw sticky food. My daughter is always tracking in with her shoes and my son is crawling, so I have to try and keep it clean. We made photo collages for mother's day. My daughter made paper flowers with photos in the center. My son finger painted paper hearts and I'm adding his photos too.
Posted 5/6/2011 2:06 AM (GMT 0)
That sounds nice, Inflamed; a gift from the whole family. I'll bet Grandma will get a real kick out of that, and will appreciate knowing that everyone thought about her for so long.

Thanks for explaining about the floor. That makes sense. Hard work for you, though...
Posted 5/6/2011 8:20 AM (GMT 0)
Nausea isn't good Nanners and it can't be good or 'normal' so maybe it is worth looking into 'why' ?

Inflammed, don't know what type of flooring you have but have you considered a steam cleaner-takes a lot of effort out of the 'scrubbing' wink

That is a thought Ivy, it just seems like it is a vicious circle knowing what to do for the best. Did a bit more research last night and it appears that pre-biotics could be better suited. well done you on the scary paper pile I have had one of those(house/car insurance,council tax, bills etc all came at one :( ) major thing left to do is to now get ds to apply for student finance/accomodation for September(deadline is looming)

Inflammed-have just seem that you have wood flooring so I guess a steamer wouldn't be too bright on wood! The photo collages sound wonderful. I guess Mother's Day out there is a different date to here-ours was back in March.

Posted 5/6/2011 9:21 AM (GMT 0)
This is a wild thought based on a dim memory, but I think that the UK Mothers Day is actually Mothering Sunday, whereas the US (and Aus and prob other countries) Mothers Days were instituted by one of the US First Ladies... Mrs Roosevelt, I think.

It's getting cold here, and my hands are numb - makes it hard to type.

btw, re scary paper pile, mine goes back to last year!!! But thanks to Thursday's effort I only have one major 2010 document to do, and then I'll be more or less caught up :-).
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