Posted 6/6/2011 1:40 AM (GMT 0)
Hi, i'm new to this board hoping i can find some advice here....I was diagnosed with Crohn's disease about 9 years ago when they finally figured out what was wrong with me...I have been hospitalized with it only twice and on several different meds that didn't work for me...Pentasa, Entocort, Humira , prednisone and in January Remicade...I was taken off Remicade after the second treatment because i started to have problems with my right arm from should to finger...My gastro doctor sent me to a neurologist he did a EKG and MRI on me and found nothing...They have taken blood work now to see if it's rheumatoid artritis but they are not sure if it's that...They have mention Lupus and fibromyalgia but again not sure...They also thought that it's a side effect fromt the Remicade but after 6 months they say it should be out of my system....The pain now travels through out my body some days makes it hard to get out of bed and headaches...My hands cramp up and i have mucle loss...I've also notice a twitch in my left arm every now and then not all the time...My eyes are flaring upin the morning to where they eye lid and bottom is swelled up...A few mornings i have gotten up it looks as if i had pink eye but they blame that on allergies but this has been going on for over a year... I do have a stricture in my intestines where my small and large intestine meet, that my gastro keeps stretching over the last 6 years...I seem to be more constipated lately then anything but every other week i have diarrhea , i'm to the point where i can no longer hold my bowels...He says that the disease has moved down to my rectum...He now tells me there is nothing more he can do for me because he can not give me no more meds because of my neuro problems...He wants me to go out of state to Cleveland Clinic the insurance i had will not cover out of state....Now i have lost my insurance...My husband has suggested looking into disabillity but not sure if thats a option for me...I'm feeling a little stress over everything....Any advice...