First Humira dose/ Severe joint pain ( not related)

I had my first humira dose on Friday... yes after reading the posts .. I realize I am the sissy of the group but for me.. it hurt really bad. Not the injection but the meds going in. I am not sure if it is because I am in so much pain already and I just have no tolerance left or it really hurt like heck.

Spoke with the dr again. He could see that I can barely walk, need a wheelchair and every time he moved me, I cried. He checked with me about the Vicodin which is a joke. He prescribed hydromorphone so I could sleep but it didn't work. Not even a little. It maybe gave me an hour of sleep, no help with the pain.

I am scheduled to see the Rheumy at the end of August. I am not sure I can wait that long. Dr hopes that humira works a miracle on me but he doesn't even sound confident. He is confused as to why I am barreling down hill with my joint pain. He can see the swelling, the pain I am in, the snapping, the popping, the numbness but there are no answers. He has run all the blood tests but still nothing else is there.

So far so good with the Humira.. just had some nausea and a bad headache ... and a couple of hot flashes. I just can't move because of the joint pain... I have tried to walk it out...but that makes the pain worse.. I have tried to rest but that makes the pain worse. I have tried a combination of moving/resting but that makes the pain worse. Nothing brings me relief.

For me, the joint pain has been the most aggravating symptom of Crohn's. And I have a new respect for all of you who have had this disease for years. I had no idea what Crohn's was about until I put on your shoes and walked. It is a nightmare. Hugs to all of you... and you are all in my thoughts daily.

Aww June I am so sorry you are still in so much pain. And even worse nothing is helping your pain. Have you tried Methadone for your pain, maybe that would help you more??

As for the Humira, I have read very frequently that the Humira med does hurt going in. Alot of folks leave the med out for at least a half hour to warm it up some, and also ice the area really well before they inject. Some folks use the pen and it seems 50/50 who like it or hate it that way. Others prefer the regular syringe to the pen. So in this aspect, you are not alone.

Hope you find relief soon. Gentle hugs!

I'm so sorry you are still having so much trouble, but hopefully the humira will help some. I agree that you need to push for some form of pain relief that will help. Personally I am not having any luck getting any myself, but so many others do, that I have hope that there are doctors who will help in the pain relief area.

Years ago a woman my husband worked with was newly diagnosed with CD and I spent a lot of time talking with her about Crohn's since I had had it for many years longer and lived with it my whole life. At the time, she had been hit really badly, probably like you. She was wheelchair bound and could barely move. Eventually the doctors found the right medication for her and by the time my husband left that company she was walking and functioning pretty normally again. This was in the mid 90's, so long before most of our current medications were available. I just wanted you to know that there are some who do get better, I have met them!

sending you hugs and best wishes that the humira helps and that you can find some pain medication that will give you some relief.

Hi, I too took Humira and it was very painful. We would let the medication rest out of the fridge and ice the area. But it just plain hurts. I unfortunately had to quit due to lupus from the Humira. My joint pain is over the top and I can't sleep through it. I am waiting to see a Rheumy. I find a heating pad gives some relief. Take care, feel better soon!