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Crohn's Disease
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Posted 7/28/2011 4:55 PM (GMT 0)
I ran away for a bit, but realized that coming here was what was making feel a little better.  I really do enjoy sharing with and hopefully helping you guys....you all are really so nice and understanding.

Still feeling pretty blue and pretty frustrated with the other human beings in my life.  However, I have decided that I am going to attend the weekend function and just do the "that's nice" conversation and think what I want.  If someone wants to drag me into a negative on me conversation, then I guess I will just have to say something.  That's what is getting me through...I may not be able to speak my mind at work, but if a friend or acquaintance decides to make negative commentary...then I now feel free to spew on them...that really would be a great release.

My oldest brother had taken his own life and I always worry that great sadness could envelope me too.  The difference is......I am going to shout from the hilltops to stay wacky, and fun loving.

Posted 7/28/2011 5:08 PM (GMT 0)
Habs we are all here for you always. I missed you guys sooo much when I was in the hospital. I think I would honestly be lost without you guys. Someone is sure to have an experience to share, and that helps me to not feel so alone.

I have found, and I think many on this site might be surprised, but I don't let folks push me around anymore. I can have quite the temper when pushed to far. So I agree speak your mind, no one has a right to make you feel bad. Hugs!
Posted 7/28/2011 7:58 PM (GMT 0)
On another thread, you mentioned that you got by on just Pentasa and some medicine for D since your resection. I have an ileocecal valve that is always open so I have urgency issues. What do you take for D, if I may ask?
Posted 7/28/2011 8:29 PM (GMT 0)

Hey Older...I use cholestyramine (Questran, Prevalite are brand names).  Many others on here do too.  It is what I call my miracle drug as it lets me leave the house and still have food.  I had 18" resected at my TI so I am not absorbing the liquids...so always D even if I just ate a cracker.

I believe cholestyramine was originally created for people with high cholesterol as it helps to mitigate the fat issues.  As a nifty side effect...I have lower cholesterol levels in addition to being able to not worry that my husband is in my way to the bathroom (I did push him out of the way the other day!)

Posted 7/28/2011 10:54 PM (GMT 0)
You're right talking does help. And if you can do it anonymously, more the better. We're always here to with a shoulder when you need it.

BTW, how's the heat up there?
Posted 7/29/2011 1:51 AM (GMT 0)
Hmmm, no hilltops to shout from down here but if you wish to stand atop a speed bump and shout, thats wacky and fun loving enough for me. Just keep coming back for more of the good stuff we have here. It may not be the iron clad answer but the feelings are honest . Not too many places you can get that anymore.
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