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Crohn's Disease
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Posted 9/4/2011 6:25 PM (GMT 0)
Just wondering if anyone has ever went down this avenue.  I remember I was debating it last year when I was sick and dying and nothing was working but never followed up with it because the Remicade started working.

I have a friend who goes for something he has and he said he was a skeptic but it has totally changed his quality of life.  In the beginning it was costly because he would have to go once a week or so but now that it's just maintanence he only has to go once every 2 months or so.

I'm just looking into alternate methods.  The remicade is still working, but not how I would like it to be.  I still take the tramadol everyday (but because of my high tolerance I take 3-4 pills at a time) and sometimes that doesn't even help and I turn to the percocet but then I feel guilty because I know my doctor doesn't like me taking it plus then I get stressed out because I think what if I run out of the percocet?  She probably won't prescribe it to me.  So it's an endless cycle of feeling bad physically and then feel bad mentally between the quilt and the worrying! 

Yesterday I was on a date at Dave and Busters and all of a sudden I had an attack where it's that crazy intense pain and he was like "You seem spaced out."  Usually I'm good at hiding the pain but not when it's that specific kind.  The percocet helped eventually but I just get nervous lately because like I said, what will happen when I run out?

I don't even know if I will actually do it, I think first I want to call and ask for a consultation, find out more about it.  My friend asked his guy if he treats Crohns and he does, but warned him that it can be a lengthy process.

Thoughts?

Posted 9/4/2011 7:13 PM (GMT 0)
Im studying to be a naturopathic doctor and i know for a fact that most alternative therapies take a while to get things going (which is normal because our diseases didnt arrive overnight either). drug therapy treats symptomatically but not your entire self (if that makes sense). i go see a homeopath and its helped my brain relax = my colon relax (ive significantly changed over the year because of it). im sure acupuncture will do the same. it will work on your psyche and emotions that will in turn help your gut. Our colon has as many nerves as the brain and that's why its literally called the 2nd brain. i say give it a go! ive had 10 sessions with my therapist and its long but when i leave i feel lighter and there's a slight bounce to my step!

i've been meaning to try acupuncture too but i'm still a bit scared of needles. maybe when i start classes in chinese medicine in year 3 i will be totally motivated :D
Posted 9/4/2011 9:23 PM (GMT 0)
Hello SaraOnThisSite,

I tried acupuncture a couple of years ago. I went 3-4 times a week for a couple of months and didn't see a difference. I was planning on sticking it out longer but ended up in the hospital with an obstruction from inflammation and just didn't go back after I got out.

Just because it didn't work for me doesn't mean that it won't for other people. I don't regret doing it. Actually I am glad I did it. I see it as trying everything in my power to help myself.

Give it a try!
Posted 9/4/2011 9:31 PM (GMT 0)
I was going for acupuncture for several years for joint pain. It took months before it helped but it did help eventually. However, it did not help my CD pain. As in all things CD, we are all different, so it might help you. I can tell you that the needles are almost painless and the time spent after they are put in is very relaxing and calming, but it is expensive. If you can find a community clinic you can save money but you will give up a little privacy. They have screens instead of private rooms and you can hear some of the consultations. In exchange for the lack of privacy it costs about $15 per session instead of $60+. Some insurance companies will pay for acupuncture so you should look into it. My attitude was, it is basically non invasive so it was worth giving it a shot. I only stopped going because the guy I was going to became too busy and moved locations so his schedule and mine were not working out.
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