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Crohn's Disease
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Posted 9/7/2011 4:02 AM (GMT 0)
  Hello, My crohns is flaring again and I am on the remicade,but now my dr has me taking prednisone. 40 mg daily. I cant sleep but only an hour a night and not today at all and am still up. What can be done about this not being able to sleep just tossing and turning. Its miserable.
Posted 9/7/2011 4:45 AM (GMT 0)
hi there.  right there with you!  sleep and i do not get along at all right now either...

benadryl helps me sleep a lot of the time.  i also take oxycodones for pain so sometimes they make me a bit groggy, but not so much.

ask your doc about a sleep med like ambian- i persoanlly hate the stuff and stick to benadryl or a good book.

Posted 9/7/2011 1:34 PM (GMT 0)
When are you taking your Pred? If its not as early in the morning as possible, then you need to switch to as early in the day as possible. I usually try to take it by 5 am at least and that helps the insomnia. Good luck!
Posted 9/7/2011 1:54 PM (GMT 0)
Nan got this one,,

Been on pred for years, absolutley, take first thing when you wake up. I am jittery till about noon from pred and I get up at 7. Don't split the dosage in two time frames, all in the morning :)

Thanks

Jon

Posted 9/7/2011 6:23 PM (GMT 0)
I was started on 40mg and spliting the dose does not help..It took me about a month to get over extreme moodiness and insomnia..I was up roaming around all hours of the night..I was hungry for the first time!
Cindy
Posted 9/7/2011 7:38 PM (GMT 0)
Ask your doctor for a mild sleep medication. Once the dosage is reduced you won't need it, but sleep is important. Our bodies do the best healing while we sleep, so if we aren't sleeping, we aren't healing. Being on something short term shouldn't be a problem, especially if it is something mild. There are lots of options out there, so if one doesn't work, ask for something else.
Posted 9/8/2011 12:53 PM (GMT 0)
Hi,
This is my second year taking pred. When I was on 40 mg, I used to split the dose: 20 mg in the morning and 20 mg at night. Of course, I had insomnia at the beginning and my doc prescribed me Xanax 0.25 which I used to divide. It helped until the dose was tapered and after 6 months, I got rid of Xanax easily. Take care!
Posted 9/11/2011 6:13 PM (GMT 0)
I also am back on prednisone due to a flare up.  I even take something to sleep and it is not helping, and I take it in the morning.  If you know a way to get over this feeling please let me know. I also get jittery, and I thought I was nuts with these symptoms until I got on this forum.

 

Posted 9/11/2011 7:03 PM (GMT 0)
no you're not- prednisone is horrible but very beneficial at the same time. i hate the stuff but cannot get off of it.
Posted 9/11/2011 11:51 PM (GMT 0)
hated steroids , they made me put on a lot of weight , i used to shake
a lot had nose bleeds and i dont think i was a nice person while taking
them. the good thing about them my crohns went into remission for
a while . i no longer take them
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