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Gas & bloating everyday!

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Posted 10/4/2011 2:28 AM (GMT 0)
By the time 4pm rolls around I am in so much pain from gas & distention, and it doesn't seem to matter
what I eat, or don't eat. All I know it's making me so miserable and darn it.. it hurts.

Have any of you got a remedy to stop this from starting... I really thought my surgery was gonna help with
all these stupid things, but if anything it's gotten worse.

I'm so miserable, and feeling sorry for myself... like a big baby... Help!!
Posted 10/4/2011 3:21 AM (GMT 0)
The only thing that has taken care of my excessive gas and bloating was when I went on fibre supplements, daily and indefinitely as directed by my GI...fibre (supplements as well as fibreous foods) can increase excessive gas and bloating but this is normal, your system just needs to adjust to it (took me 3 months but it's been sooooooo worth it).
Posted 10/4/2011 3:25 AM (GMT 0)
Vicky, I'm so sorry you've been struggling so much despite having the surgery. My husband had some horrid gas, and trapped gas feeling that kept him from being comfortable and also kept him from sleeping well at night.

Before the doc prescribed him steroids, the things that seemed to help him was taking gasx, which seemed to make the gas a little easier to pass. He also stopped eating things that lead to gas production, including carbs. I put him on the introductory SCD diet (without the jello and cheesecake - basically he had the soup and meat for several weeks). It seemed to help him a little bit. When he started losing weight, I put him on boost glucose control that is made with splenda (he does ok with it), but it did give him extra gas. He also walked around a lot, since moving helped to get the gas out.

But honestly, he was suffering until they started him on pred. Oh, i also tried some fennel and peppermint tea - i think it helped the gas smell, but not the symptoms so much Can you take some pred? Or entocort. Perhaps you are already on it and it isn't helping.

Also, it is possible you have sibo and a course of antibiotics may set you right. Your GI should be able to test you for sibo. I have a feeling I am not telling you anything you don't already know. I'm sorry. Gentle hugs Vicky, and I'm sending healing prayers your way. I hope you find some relief soon.

PV
Posted 10/4/2011 3:39 AM (GMT 0)
Vicky, I'm like you—confused about all this after surgery stuff.

After my last surgery (my 2nd open-ab resection), it took such a long time before I saw a considerable amount of improvement, in regards to the gas pain and bloating, at least 4 months. I figured the scar tissue inside was sensitive and the bowels were taking long to adjust.

And now, 7 months later, I'm still having "d", spasms, some bloating, not as much gas pain though. For me, it is at least partly nerve/muscle pain, as my GI (and members here) says it takes 1 year to fully recover from a resection.

What can we do to stop this? Sheesh, if only I knew! I'm trying meds, probiotics, digestive enzymes, herbal teas, supplements, natural remedies, different diet modifications.

At 4 months, my GI didn't seem too concerned. I started imuran again, just in case.

What does your GI say? Maybe try the antibiotics or pred, as PV suggested?

Try not to worry. I know it's hard.
(((((dunny)))))
Posted 10/4/2011 10:21 AM (GMT 0)
Vicky, I had similar problems last winter. And when I described my symptoms to the dr. he kept saying "everything you are telling me is functional". So he put me on Bentyl and gave me an IBS dx on top of CD. Wasn't happy about that but the Bentyl seems to help when I'm having those issues. The strange part is it all seemed to pass, maybe the IBS isn't active right now?

Hope you find some relief soon.
Posted 10/4/2011 12:27 PM (GMT 0)
I've been having the same problem the past couple of weeks! I'm about 2.5 months (WOW!!!) out from surgery. I've noticed that I'm getting more and more gassy, especially at night and get bloated a bit. I'm not in any pain though. I'm reintroducing a lot of things I haven't eaten in a while back into my diet (veggies and fruit), so I assumed it was just my intestines getting used to different food in there. It only seems to happen to me after I eat something that doesn't agree like really fibrous stuff or candy ( cry ).

Sorry, wish I had some advice/something I could do to help. Just wanted to let you know you're not alone, especially since I htink we both had surgery around the same time...
Posted 10/4/2011 1:07 PM (GMT 0)
Thanks so much guys for the input,
Posted 10/4/2011 2:37 PM (GMT 0)
No one has mentioned the possibility of a bacterial overgrowth. It sure sounds like what I have experienced Vicky. Lots of gas and bloating and stomach discomfort, especially after eating. I would talk to your GI about it. Easy to treat with a 10 day course of antibiotics and a really good probiotic. Hugs!
Posted 10/4/2011 8:58 PM (GMT 0)
I've been struggling with C, gas and bloating the past few weeks following bad D and Cipro. I'm having a colonoscopy on Thursday. I know this is going to sound pathetic, but I'm actually looking forward to the colonoscopy prep tomorrow so I can clean myself out and get out of pain! I hope you figure out what's wrong. I agree with Nanners. In the past Cipro has helped me, but not this time around. Hugs and good luck. I hope you figure it out and feel better soon!
Posted 10/4/2011 9:04 PM (GMT 0)
Did you by chance have the j pouch surgery? If so then probiotics daily and indefinitely are a must to keep pouchitis at bay...if not then disregard my post :)
Posted 10/4/2011 9:56 PM (GMT 0)
Nanners, stool samples were all normal.

pb, no, just a straight forward open resection.

I have a feeling this is all part of the disease for me, I guess I was hoping for some time out after
surgery, my feeling is it's not gonna happen. For some reason this last surgery has little or no effect
on how I feel. I can't imagine why things haven't changed. The surgeon told me he took all the nasty
bit, and left a clear margin. Maybe some of my problems a pancreas created and not all crohns. I do
tend to forget that I do have other problems lurking:(
Posted 10/4/2011 10:03 PM (GMT 0)
Vicky, the test for SIBO is not a stool test. It is a hydrogen breath test. You take a baseline breath test, and then take lactulose water. You then take another breath test, at 20 minutes, 40 minutes and 60 minutes after drinking the lactulose. A change in the level of hydrogen and/or methane gas above 20 parts per million within 60 minutes is diagnostic for SIBO. It is a pretty non-invasive test - doesn't hurt to check. If it is the case, they'll put you on flagyl or something like that, and it'll fix you up. I hope it is something fixable like that for you.

PV
Posted 10/4/2011 11:31 PM (GMT 0)
Pv. thanks sweetie, I'll mention it to my GI next week!!
Posted 10/5/2011 2:01 AM (GMT 0)
When I had SIBO symptoms, my dr didn't bother with a breath (or any other kind of) test. She just went with a course of antibiotics, and it worked out.
Posted 10/5/2011 2:49 PM (GMT 0)
Same for me clonehead!! Doc just based if off my symptoms.
Posted 10/5/2011 3:56 PM (GMT 0)
Hey clonehead and Gail, I did a little researching into SIBO, you all obviously know that CD and previous
surgery can cause the overgrowth, but I also found out the pancreatic disease can create the same problem.
Now my next query with this is, why hasn't my GI considered this! I have all of the above, but not once
has this disorder been mentioned!!

Just another good reason why this site is so invaluable... Now I can go see my doc armed with my new found
info, thanks to you guys.. Thanks!!
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