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a question for the interstitial cystitis people

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Posted 10/14/2011 11:24 PM (GMT 0)
Have any of you discovered some sort of trigger that can make your IC suddenly worse?

I was pottering along reasonably well yesterday, until suddenly, bang! I had to rush home, and was up and down for most of the afternoon and night.

My gut tongue instinct tells me that this is probably triggered by diet, but I can't think what the culprit might be. All I know is that the bladder gets worse as the gut gets more irritated.

I'm trying to clear my head and desk and life enough that I'll have some mental energy for doing a proper food diary, but, until then, I wouldn't mind any clues on what might be causing a sudden change in symptoms.

Thanks heaps,

Ivy.
Posted 10/15/2011 12:19 AM (GMT 0)
I wish I could help Ivy, but I have bouts of this, and really nothing has changed. All I know it's an awful
bloody nuisance!!

You have my sympathy. Hugs!
Posted 10/15/2011 12:43 AM (GMT 0)
Absolutely! It's bad enough having to deal with runs at one end, without doing it at both :-)

Thanks, Vicky.
Posted 10/15/2011 1:33 AM (GMT 0)
Just experimented by trying the same meal, and feel as if I may have done it to myself again.

Kangaroo, steamed potato,, peas, brussels sprouts. Hmmmm. The roo should be safer than most other meats, being wild, so maybe it's one of the veg? Weird.
Posted 10/15/2011 3:04 AM (GMT 0)
I have an awful memory but did I read somewhere that cranberry supplements can trigger this problem?
Posted 10/15/2011 4:13 AM (GMT 0)
Thanks, FG, but I'm not doing cranberry.
Posted 10/15/2011 12:55 PM (GMT 0)
If you are looking at one of those veggies as the possible culprit my first guess would be the brussels sprouts because they are in the sulfur category.
Posted 10/15/2011 3:12 PM (GMT 0)
You eat kangaroo's???? I didn't know people ate those. Learn something new everyday:)

The pea's might be an issue too. I know that they have little seeds in them, and could irritate your system. Hugs!! It has to be miserable peeing out of both ends.
Posted 10/15/2011 10:05 PM (GMT 0)
Thanks for that, cupcakes. What's the issue with sulphur? I'm still trying to educate myself on this.

I'll be completely annoyed if they are the sprouts because they are one of my favourite veg, and, also (weirdly enough) one of my safer Crohn's veg.

Yes, Nanners, indeed we do. It's very high in iron, very low in fat, and extremely yummy. Almost a fruity flavour, and plum sauce is a traditional accompaniment, if that's any help.

Their population has exploded since white people came and put in all those lovely grasslands and dams, so sometimes they need to be shot before their population reaches critical mass and they starve... and it's better to eat than waste them.

Ivy.
Posted 10/16/2011 2:04 PM (GMT 0)
Hey Ivy maybe you should try just eating some sprouts and see how you react to them. Just a thought!

Thats really interesting about the Kangaroo. I can't imagine a fruity flavored meat. But it does sound very healthy. Hugs!
Posted 10/16/2011 3:00 PM (GMT 0)
I may be wrong, I am not a doctor or nutritionist but I know sulfur veggies are sometimes called detox veggies. Something in the sulfur of cabbage, brussels sprouts, ect help the body and liver with the detox process, so my thought was that could have triggered a reaction?
Posted 10/16/2011 3:01 PM (GMT 0)
Can't post anything useful, but I hope you discover the root of the problem, ivy.

... Meh. Did a search for IC and diet and I couldn't find anything related to sulphurous veggies causing flare-ups. You might have seen these links already, but...

www.ichelp.org/diet
en.wikipedia.org/wiki/Interstitial_cystitis#Diet

Sounds like there's a good chance the sprouts have nothing to do with it. But strange person for liking brussel sprouts ;p
Posted 10/16/2011 3:12 PM (GMT 0)
I wish I liked brussels sprouts, they are so good for you! Hopefully that is not your cause since you like them! I have read they are a great anti-inflammatory and good for digestive and liver health! All things we can use. I have tried to like them, but no success. I do like brussels cruciferous friends!
Posted 10/16/2011 8:54 PM (GMT 0)
Well, you may have been onto something, cupcakes.

Tried roo, potato, carrot, parsnip and peas: no problem.

Thanks heaps.

Ivy.
Posted 10/16/2011 9:11 PM (GMT 0)
Ivy, does it feel as though you have like little paper cuts in the bladder, and do you have blood in
your urine? Just wondering, as these are my main symptoms, and my diet is really very bland
because of CD, so I don't have the diet correlation...
Posted 10/16/2011 9:22 PM (GMT 0)
No. I'm not sure how to describe the feeling. It's sore? Irritated? Bruised? And lower down feels quite sore. No blood, either.

It's so frustrating. I don't even know how long this is going on. When the CD was really bad, I was running to the toilet every couple of minutes so wouldn't have noticed any bladder involvement, and it's really only since starting on the higher level drugs that I've realised that something else is going on. Ditto diet - you start introducing new foods and think more about your gut than anything else, but then, eventully, you start to realise it's upsetting other systems too.

Grrrrrrr.

If I were running the world, everyone would have one chronic illness, instead of an unforunate minority having to deal with several at once. Much easier to deal with one illness than several.

Got fibro brain this morning, Vicky - hope this isn't too rambly.

Ivy.
Posted 10/16/2011 9:45 PM (GMT 0)
I know the feeling Ivy! I have so many diseases now that they all intemingle, and I'm never really quite
sure which one is causing what. So hurry up and start running this world :)
Posted 10/17/2011 2:13 AM (GMT 0)
Just so happens I had a gp appointment this morning. He did a test and found blood in urine (snap, dunny) so thinks maybe I have an uti on top of other things. Results (and antibiotics) are pending. Bah.
Posted 10/17/2011 2:39 AM (GMT 0)
Sorry Ivy, I must have talked that up. Hugs!!
Posted 10/17/2011 2:45 AM (GMT 0)
It hurts, Dunny :-(.

Can you actually see your blood, or does it just show up in tests?
Posted 10/18/2011 2:19 AM (GMT 0)
Update again. No infection - must "just" be IC. It's annoying, actually, because it's hurting more than it has before, and a quick fix and easy answer would be nice.

*sigh*
Posted 10/18/2011 2:55 AM (GMT 0)
To answer your question, no I never see blood, but it's always present in large quantities when the do
a lab stix.

Yes it does hurt Ivy. I hope this passes soon for you. Hugs!!
Posted 7/31/2012 12:04 AM (GMT 0)
I just happened across this thread while searching for anything on the healing well forum that had to do with interstitial cystitis.

There is a great resource at www.ic-network.com/diet/#icfoodlist and they also have an app that you can download on your iphone or ipad. It costs 99 cents (US).

Btw, brussels sprouts are supposed to be very good for IC.

I was diagnosed with it five weeks ago and will be having my fifth treatment tomorrow. I have been following the diet and I can see some improvement. However, out in public I still leak and don't even know it most of the time. They told me to cut down on my stress. Yeah, right. I'm about a 15 on a 1-10 scale on stress. :(
Posted 7/31/2012 2:43 PM (GMT 0)
Ivy, when I'm dehydrated I have bladder discomfort and burning just like a UTI. Also when inflammation is present in large degree, it can cause pressure on surrounding organs. Brussels come from the cabbage family so cause gas. With crohn's I have to watch my diet for gasey foods because it can be painful.
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