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Crohn's Disease
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Posted 12/25/2011 9:59 PM (GMT 0)
Do GI symptoms tend to get better when extra-intestinal symptoms show up? Thanks
Posted 12/26/2011 2:12 AM (GMT 0)
I'm not sure that particular question has been studied, but my guess would be no.

One thing I can say is that extra-intestinal manifestations tend to get better when GI disease is treated.
Posted 12/26/2011 3:31 AM (GMT 0)
Just the opposite for me. When the extra-intestinal manifestations show up, that means I'm about to flare up. Shortly after or at the same time I'll start getting diarrhea, bleeding ect...
Posted 12/27/2011 1:29 AM (GMT 0)
Jen, that's probably the more common scenario.
Posted 12/27/2011 3:55 AM (GMT 0)
I'm like Jen. I know when the joints start to ache that I can expect Mr. Crohn's to come by for a visit soon. I've had a lot of arthritis pain(from the Crohn's) with this flare. Yesterday I barely got out of the bed and was a fetal position all day from achey joints. Today I have been using the bathroom nonstop and my GI symptoms have been horrid. Thank God for Zofran & Tramadol.
Posted 12/27/2011 4:51 PM (GMT 0)
thanks everyone for your replies!
i've never had joint pain before so i'm not sure what's going on. my GI symptoms have gotten a bit better simultaneously so i'm extra confused.
i have an appointment with my GI in a couple weeks so i guess we'll have a lot to talk about
Posted 12/28/2011 2:21 AM (GMT 0)
I am new to this site and so far it looks promising. Let me start off by saying Crohns sucks a lot. Getting doctors to understand the pain you are in 24/7 is nearly impossible. I have started getting shots in my knees as I have no cartlidge there. The doctor is also looking at shots in the back as I do have a deteriorated disc there. Probably had some help. I found out a few years ago about the pelvic inflammation and again there is nothing the doctors said they could do. Some days I can barely walk due to the inflammation and I don't know what triggers it. For pain I am on opana and oxycodone. I outgrew pentasa at max dosage so now am on asacol. Really would like all the info possible as to these symptoms and possible relief. I don't like to feel like I am fighting a losing battle.
Posted 12/28/2011 2:28 AM (GMT 0)
i hear you. even though i have inflammation, especially in my knees, nsaids don't seem to help. is that typical?
Posted 12/28/2011 3:31 AM (GMT 0)
NSAIDS are not a good idea with CD. It can make things worse. See you doctor and make an appointment with a rheumatologist. Hopefully between your GI and a rheumy you'll get some relief!
Posted 12/28/2011 7:18 PM (GMT 0)
I once had an old rheumatologist tell me that joint pain is often a precursor to a flare. I have found that to be true most of the time. But I have had CD for a longtime and have constant joint pain now, but that is becuz I also suffer with Fibromyalgia and Osteoarthritis.

I agree with sparkleplenty do not take NSAIDS. They can cause bleeding in us Crohnies. I too think you need to talk to a Rheumy to get some help for your joints. Hugs!
Posted 12/28/2011 9:19 PM (GMT 0)
sad
If jointpain preceds a flare then I´ll just have to wait my joints aren´t nice to me right now..

And keep of NSAID be nice to your intestins.
Take care!
Posted 12/28/2011 9:33 PM (GMT 0)
I am wondering...what meds are you on?  You don't mention it and I am thinking that if you are on Remicade...you might be developing antibodies.  That is how it started with me.  I would get the worst joint pains.  Since getting off the Remi, I haven't had any.  Just a thought.
Posted 12/29/2011 4:41 AM (GMT 0)
My extra-intestinal stuff was at it's worst when my disease was active and out of control..I had kidney stones, joint pain, gland problems, fluid issues, and early menopause..It seemed everything was being attacked along with my intestines..I had mouth/teeth issues along with upper GI symptoms..My stomach stayed inflamed with problems with my esophagus..My doctor would not do anything for me..Just take Tylenol..when every joint in your body hurts that is not a good statement!! I was never on biologics so I don't have an answer for that..
Cindy
Posted 12/29/2011 6:44 PM (GMT 0)
My Extra-intestinal stuff is usually bad, even without a full-on flare. I suppose there may always be a little imflamation going on somewhere, even if I don't notice it. I believe my pain med(s) may surpress some of the GI stuff.
And of course, I have Osteoarthritis on top of the CD arthritis. But I had kidneystone attacks and CD arthritis in the past seperate from flaring. That is one of the differences (not a hard fast rule!)between UC & CD. Arthritis in UC follows the disease. Mr. Crohn's is very mercurial that way.. IME

Sincerely,
Matthew
Posted 12/30/2011 5:02 AM (GMT 0)
I have had crohn's-related joint pain on and off for the last two years, but my gut has been relatively good. Acupuncture and Chinese herbs and a veggie glucosamine along with lactobacillus probiotic have helped TREMENDOUSLY to keep the arthritis in check.
Posted 12/31/2011 12:58 AM (GMT 0)
I tried Glucosamine back in 2005 & 2006. Only moderate relief from joint pain. Of course, with the osteo now, it might be more of a benefit. I might try again..

Matthew
Posted 12/31/2011 1:07 AM (GMT 0)
Osteo-biflex with glucosamine didn't help at all. When I switched to Vege Glucosamine by Karuna, I experienced relief within a few days. It's a vegetarian version and really helps me.
Posted 1/1/2012 1:22 AM (GMT 0)
Sounds Bland, but if it helps I'd be willing to try it.

Matthew
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