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RANDY NO GUTS - PLEASE READ

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Crohn's Disease
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Posted 1/5/2012 11:53 PM (GMT 0)
Hey, don't know if you have seen my posts. I looked into some stuff and found that you had a duodenal ulcer and said it was cured by lazer??? Could you please tell me more. I have a duodenal ulcer in the duodenum that continues to bleed. I have to have blood transfusions as my hemoglobin is always bad. I was down to 70 when I went to the ER for the blood because my hemotologist denied me blood. I have had a hell of a time. The surgeon wants to hold off as it is a major surgery with high reoccurance. I am on Humira weekly and 9mg Entocort daily, and this other rabeprzole ?? daily. Can you please enlighten me on anything. I feel I am going to die, but after reading your story there must be some hope for me. I remember your name from when I first joined.

Anyway, I so hope that you have something for me. Are you in Canada?? I am.
Posted 1/6/2012 12:16 AM (GMT 0)
hey blacky, nope im in WA . just under BC.. anyhow, yes i have had several big bleds . the last one was from a dueodenal ulcer.. they went in with a laser scope from the mouth . got to the ulcer and cauterized it from inside, took about 20 minutes. no problem since. i think it was about 2.5 -3 years ago already. was done in a hospital in the endoscopy lab.. good luck.. randy
Posted 1/6/2012 12:18 AM (GMT 0)
Thanks, I will mention it. How often do you have blood products??
Posted 1/6/2012 12:22 AM (GMT 0)
havent had any for a long time.. so maybe when i have a big bleed .. so every few years i guess..
Posted 1/6/2012 12:36 AM (GMT 0)
I have been just in a turmoil over this whole thing. Dr's keep passing me off like I am a ball. So frustrating, trying to not get to down in the dumps. There has to be something they can do.
Posted 1/6/2012 4:43 AM (GMT 0)
I used to have duodenal CD and I remember how painful it was. It settled down some after my 1st resection.
I've read that probiotics help with ulcers. If I'd known back then, I'd have tried them for sure.
blacky, are you on any probiotics?
Posted 1/6/2012 3:12 PM (GMT 0)
no, what ones should I try, are they pills? I eat yogurt that has probiotic in it. Roni, was your resection in the duodenum?
Posted 1/6/2012 3:51 PM (GMT 0)
Usually a good probiotic is a blend of several strains.
My resections were in the TI, but my GI told me that sometimes the other areas of CD settle down some after the main or bulk of it is removed. After my first resection, my CD came back in the TI, but the duodenum improved.
My GI tells me to take the probiotics. I take Garden of Life Primal Defense, but I've heard others are good too. VSL#3, SCD yogurt, I forget some others.
Maybe try a search on the forum for other brands?
Posted 1/6/2012 3:55 PM (GMT 0)
I have been reading and I also found that certain ones are for certain things, so, I think I will keep reading and give one a try that looks like it may help. Thanks for your info.
Posted 1/6/2012 4:06 PM (GMT 0)
Blacky, I'd love to hear what you find out through your research. Maybe post or email?
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