Not handling my flare well

How long have you had the Crohn's diagnosis? Do you think there is some element of denial that your diagnosis is correct? What medications are you supposed to be taking? I think it is very hard to accept a chronic illness diagnosis that is going to be with you for the rest of your life. I was lucky and was in remission for over two years. I stayed on my medication, but there was a point where I had some magical thinking that maybe it would never come back. ( Boy I miss those days now!) Maybe if you shared a little about what is making it hard for you to face this and deal with it, we can come up with some ideas or suggestions to help. My guess is that all of us wish we could just be "normal," and have the Crohn's be like a bad dream that just goes away. Unfortunately it doesn't work that way, we need to allow ourselves time to grieve, because all chronic illnesses represent a loss, but then we have to try to live our best lives. I hope this helps.

Hi grin! Thank you for your post and being so honest. I am new here. I was just diagnosed 8/11, although I have had symptoms since 2003. I have yet to find a definitive treatment that works for me, but I get complacent after they treat me for an acute flare w/ steroids and antibiotics and I start to feel better. My complacency is w/ my diet. When I'm flaring really bad and in a lot of pain, I either go on a clear liquid diet or at least very bland. I tell God I am good be good for the rest of my life and watch what I eat if he will just help me through this. However, when I start to feel better, I think I can eat whatever I want and I back slide. It's a viscous cycle. I too am my own worse enemy. I am currently in a flare and hope that this time I don't repeat the past. I am awaiting a referall to a new gi so I can get on a definitive treatment, but I am on the steroids and antibiotics right now. I do believe that I do not want accept that I have this disease and it's something I will have to deal w/ forever. I have not yet figured out how to come to terms with it. I just want you to know that your not alone and I feel your pain. I wish I could tell you how to avoid becoming complacent, bit I myself have yet to figure that out. If somebody could tell me how to make my email public on my profile, I am open to anyone who wants to communicate privately.

G&B It, do you have a weekly pill schedule container? I find it extremely helpful in remembering to take my meds.

I've never felt so well that I thought I was better, so I've never even been tempted to give up the meds, but I have had trouble remembering to take stuff at the right time or forgot if I took it at the right time. The weekly med container was a good investment for me.

Good luck!

I think that's pretty normal, I know I've done that. Especially earlier on in my disease. Thought that they probably aren't right about what I have. I feel okay, and slowly I'd skip a dose here and there. A few really bad flares and I stopped doing that. lol The kind that gets you put in the hospital seemed to do the trick for me!

Also it can be hard when we have to take so much. I know those middle of the day doses are the hardest for me. When I could be out and about, or just plain busy. My doctor has allowed me to break that dose up between my night and morning pills cause I just couldn't remember them.

As others have said, we are here for you! It's a tough disease, and I think it's normal to go through what you are. Flares are awful and I don't think any of us deal with them well!