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i am still waiting to go to the dr, i have a question. I was recently diagnosed with chrons.

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Crohn's Disease
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Posted 1/26/2012 4:17 PM (GMT 0)
I am wondering something, one member suggested keeping a journal so I have. I noticed if i stay on bland diet I dont feel as bad. like soup, bananas, ect. i have gone from 9 immodium aday to 1 and I have only been real sick once in 2 weeks. now every day I feel like i could go to the bathroom at any second but when i try i cant and i have mininual pain  in my stomach area is this typical of chrons? am i in remission or is it going away? can anyone answer these questions. idea
Posted 1/26/2012 5:13 PM (GMT 0)
No, not remission, but I'm glad you're feeling better. Remission would be no pain, no blood, little to no mucous, firm stool, more varied diet.
Posted 1/27/2012 12:58 AM (GMT 0)
thanks. I was on my bland diet thought i was ok. at 1030 i was fine but Today turned into a bad day. I hurt so bad and was so sick.I drove 15 miles and had to stop at a sheetz store where i got sickI just wanted to curl in a ball and cry. I made it to work i popped my immodium made it through my shift. I wish it would go away. I thought I was getting better, I went 3 days without getting sick just cramps a and a feeling I had yo go to the bathroom. I wont get discouraged, ive been sick for so long and just found out why I guess I wanted a instant cure, thanks
Posted 1/27/2012 1:52 AM (GMT 0)
The bland diet made a temporary difference, but you're obviously not going into remission, I'm afraid :-/ It sounds like that you became temporarily constipated, which led to increased pain and cramping and then having a truly bad day. That's not that uncommon with Crohn's, unfortunately: it isn't always non-stop diarrhoea.

Think at this stage you really need to see a doctor and get on some medication ASAP. Diet alone rarely does anything to stop Crohn's in its tracks. Removing certain foods can improve symptoms, but - as you've already found out - it doesn't stop the disease from happening.

Oh, and I think everyone here would like an instant cure =/
Posted 1/27/2012 2:09 AM (GMT 0)
I'm confused. Do you actually have a Crohn's diagnosis, or is it only suspected at this point?

It might be a good idea to check with your doctor whether s/he's happy about you taking so many Immodium each day. That medication is fine with certain types of gastro symptoms, but can be dangerous with others, so it might be a good idea to check, both on taking the medication itself, and on taking nine a day.

As the others have said, Crohn's symptoms are unpredictable, and it can be very hard to work out what's going on with your body from one day to the next.

Ivy.
Posted 1/27/2012 2:16 AM (GMT 0)
Gah, I really am braindead. Judging from the other thread, the Crohn's is only suspected at this point. Yet I replied as though it was definitely there.

Not that my reply would change very much. But, topic creator, you won't get put on any Crohn's meds until the diagnosis is confirmed, I'm afraid. Mind, not that a Crohn's diagnosis is a good thing.
Posted 1/27/2012 2:40 PM (GMT 0)
dusty...I agree, you are not in remission, and to the best of my knowledge, it does not go away. It's just the diet that is helping and just so you are aware...you may take all the tests and scopes and biopsies and be told you are negative for Crohn's, but still have Crohn's. Then again you might not, but the fact is you could. It happened to me. If I had not asked my GI could I could have Crohn's and still be "flying under the radar of the tests" I would not have ever known that I do have it. It was only when I found out my Grandson has it, was I then convinced that it was my problem no matter what the tests said, so I put myself on a gluten free diet ( you can find that diet on the net on lots of sites, and with food, be careful, lots of things have hidden gluten), I also went dairy free (I have problem with lactose) and fat free... because the GIs (Dr.s) I have seen could not nail down what really is wrong, they could only say if my self imposed diet is working, stay on it. I can tell you that if I don't leave all these things out of my diet then I have problems. I too started out on Imodium, then liquid Imodium, then RX Imodium, and now 12 years later, I take Cholestyramine RX. It works and it's inexpensive. You can read about it on the net. It's an old drug and there is lots written on it and then ask your Dr. about it. It might be something that will work for you.

Post Edited (2Hawaii) : 1/27/2012 7:44:09 AM (GMT-7)

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