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Crohn's Disease
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Posted 2/8/2012 4:10 AM (GMT 0)
hi

How long does it take the doctor to diagnoise you, I am currently on lomotil and questran powder, it works but, how do you know you have chrones diease or not I had blood work done, and a cat-scan of my abdomine and pelvis, I go tomarrow to find out results. What is resectioning? Do they take part of your intestines? Hopefully someone helps me soon any answers? What to do next?????<!-- Edit -->

Post Edited By Moderator (Ides) : 2/8/2012 2:01:17 PM (GMT-7)

Posted 2/8/2012 1:04 PM (GMT 0)
Hello and welcome to healingwell,Slainte
Posted 2/8/2012 9:06 PM (GMT 0)
hopefully,
I edited your post to include what you wrote on another thread. I think that's what you intended to do.

As to your questions: The fact that the doctor has started testing is a good first step. Crohn's disease can sometimes be difficult to diagnosie. If there are no quantitative results from the tests you have already had, then the doctor might order a colonoscopy.

A resection is where a portion of ones intesetines is taken out and the remainder is sewn back together. Not everyone with Crohn's has to undergo a resection. People without CD sometimes have to have a resection for other intestinal issues.

Hope this helps and Welcome to Healing Well!
Posted 2/9/2012 8:15 AM (GMT 0)

Boy oh boy.  Tough question.  You'll probably get a hundred different answers on how people got diagnosed with crohns.  It can be easily diagnosed and difficult.  I've had cd diagnosed for 22 years now.  My diagnosis went the way of lymphoma cancer.  CD and lymphoma cancer have common test results.  I Had no idea what cd was but I realized it was something bad when my oncologist said he wished I had lymphoma because he could 'cure' lymphoma.  Not sure which is the worst but my cd is NOW controlled, thank goodness.  Best advice have patience and get used to icky-tasting preps.  Seems like all the preps taste awful.  The procedures and tests are pretty simple it's the preps that are icky.  If you do have cd, I hope you don't, the thing to keep in mind...no two people are alike just like their way of being diagnosed.  Some people get diagnosed quickly and some it takes a long time.  Some people's diagnosis are a process of elimination.  It truly is a tough disease to diagnosis because not all people have the same symptoms and test results.  Some meds work for some people and some meds don't.  It's a tight-roping walk to find the 'right' medication cocktails that work.  Best of luck...hang in there...good thoughts going your way!!!!

Lili

Posted 4/5/2012 11:32 PM (GMT 0)
 

Hi

Getting diagnosed was a right hassle for me. First I had to go back to the GP five times, ( different one each time)before finally I was referred to a GI,thank god! Then I think I underwent around 6 tests including CT, Dexa scan,ultrasound, Colonosopy and another one that you swallow,various blood tests as well. While this was going on I'd lost loads of weight had terrible joint pain, and was white as a sheet with anemia. GI gave me something called creon as he had concerns about my pancreas .

Then finally I was diagnosed with Crohn's. What a relief! although normally this wouldn't be a reason to celebrate, but for me It was fantastic, I knew that my kids would still have a dad and somehow with the help of family and friends I would  get through it.

The stress was pretty awful I have to say but I'm now back to my normal weight and taking 3 asacol per day plus 2 cacium tabs having been weened off prednisolone last year.

Like most people I do sometimes worry about the future but at least I know what it is and what I need to do if I flare up again.

best wishes and

Regards to you all

Posted 4/6/2012 12:36 AM (GMT 0)
It took about a 1 year & 6 months :) I always say, if you had Crohn's, you'd know it. I'd rather get punched in the face multiple times a day than deal with the pain. Mine is severe though. I lost 85 pounds in 8 months, had bloody stools, blood dripping off the ulcers in my mouth & arthritis. Everyone presents differently though. I hope you get better with whatever you have! Soo many diseases and conditions are like Crohn's. Even a simple virus/bacteria can cause extreme tummy issues & even inflammation. Make sure they diagnose you through biopsy. Of friend of mine did the pill cam & they saw ulcers & said she had crohns. Turns put she probably doesn't & just has ibs & a bacterial infection. She started all the hardcore meds for nothing.

Welcome :)
Posted 4/6/2012 8:10 PM (GMT 0)
I started in 1993, they kept telling me I was nuts, nothing was wrong, I was depressed. I had hypoglycemia, I was boarder line osteoporsis, I couldnt eat. I was up to 9 immodium a day, I went to the dr he did a colonscopy and told me immodium is ok, I got angry went to a specialist and I told him if you are going to do a colonscopy and tell me to take immodium Im leaving, I finally have a dr that listened. I want you to know it takes forever sometimes for a diagnosis but dont give up. Pain diaherra cramping and nausea are not normal on a daily basis. Find a dr that will listen, it may not be chrons it may be somthing esle. so good luck.
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