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Crohn's Disease
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Posted 2/20/2012 11:13 AM (GMT 0)
Hey my name is Daniel and im 16 years old. :-)
I live in Sweden and im going for a ski trip next week and since i have a flare-up right now im scared of not being able to have the same tempo as my buddys.
I was at Remicade for 2 years and i didn't have a single problem with my stomach until 8 months ago when i got a really big flare-up. I'm not so ill right now but i still got inflammation in my colon.
I feel kinda good , eating pretty much and have pretty much energy . My only problem is that i almost have dhiarrea and my stomach hurts 2-3 times a day but i still use the bathroom once or twice a day so im not having a big flare-up right now. My question is should i go skiing for 4 days with my friends ( which i really have looked forward to ) or should i stay at home .
I asked my Doctor and he said that it would'nt hurt , the only thing hes worryed about is that i don't have the same energy as my buddys but he think i would manage it ( gotta have a lil fun to even that i got a disease )

My medications is Metoject and this is my pills
Morning: 2 kortison , 3 asacol , 1 folvitamin , 1 vitamin , 1 ranitidin (instead of omeprazol ) and i eat omega 3 capsules.
at night : 3 asacol , vitamin , omega 3 oil.

and these are my questions : Do you think i should go for it ? Any one got some tips about gaining more energy ? Do you think i will manage 3-4 days of skiing ?

sorry for my bad english i live in sweden :-)
Posted 2/20/2012 12:12 PM (GMT 0)
Go for it....... you sound well in control of things, ok ,so energy wise you may not beon a par with your mates but that shouldn't matter,you're young, go out and enjoy yourself,you know we have a saying here (Ireland) that youth is wasted on the young LOL If you do go then do keep us posted on how it went, Good luck with it,Slainte
Posted 2/20/2012 12:50 PM (GMT 0)

conmire said...
Go for it....... you sound well in control of things, ok ,so energy wise you may not beon a par with your mates but that shouldn't matter,you're young, go out and enjoy yourself,you know we have a saying here (Ireland) that youth is wasted on the young LOL If you do go then do keep us posted on how it went, Good luck with it,Slainte

Thanks for the support and i was also concerned about loosing weight but since i eat pretty well that wouldn't happend . I don't know if you use pounds or whatever in ireland but my weight now is 65 kilos . Ill keep you updated how it went if you want to :-)
Posted 2/20/2012 1:01 PM (GMT 0)
You're welcome,i'l look forward to hearing how it goes, Re-weight, if you feel you are are eating enough and have a well balanced diet i don't think you need to worry too much about it, keep an eye on it and if it changes much either way consult your GP.We are using kilos here in Ireland but my generation are stuck on pounds/ounces still ,:) Slainte
Posted 2/20/2012 3:21 PM (GMT 0)
I would go for it. Worse case scenario you need to rest a little more and take as many trips down the mountain. Make sure that adults on the trip know your situation.
Posted 2/20/2012 3:54 PM (GMT 0)
I agree with the above advice that you should go for it.  You might not want to push yourself to the limit so that you don't trigger another flare.  Just have a great time, watch what you are eating and drinking and listen to your body when it needs a break. 

Don't forget back-up medication like immodium or whatever else your doctor reccommends.

I wonder if your friends are aware of your CD.  It might be good if they already know about it then they will understand if you need any "special" considerations.  If they don't already know then you would have to decide whether they would handle that information well or not.

Personally, I think you will have an AMAZING time and I hope you go for it.  Your english is very good by the way.

Posted 2/20/2012 5:24 PM (GMT 0)

petittarte said...
I would go for it. Worse case scenario you need to rest a little more and take as many trips down the mountain. Make sure that adults on the trip know your situation.

Both my mom and my Doctor says that i should go .
I'm going with 2 friends and one of them's family and they all know but my disease so IF some problem would show up there shouldn't be something special. Well skiing is my passion , been going to the mountains since i was 4 and when the winter comes and it's time for skiing it's my favourite part of the year.

Thanks for the support :-)
Posted 2/20/2012 5:34 PM (GMT 0)

FunGuy said...
I agree with the above advice that you should go for it. You might not want to push yourself to the limit so that you don't trigger another flare. Just have a great time, watch what you are eating and drinking and listen to your body when it needs a break.
Don't forget back-up medication like immodium or whatever else your doctor reccommends.

I wonder if your friends are aware of your CD. It might be good if they already know about it then they will understand if you need any "special" considerations. If they don't already know then you would have to decide whether they would handle that information well or not.

Personally, I think you will have an AMAZING time and I hope you go for it. Your english is very good by the way.

So i've been told that i should go for it , i will definitely go now . Only thing that would stop me is huge kramps but i don't think theres a risk for that since i have pains 2-3 times a day and it's not even after i've been eating. The thing is that i really like Freestyle skiing you know jumping and such but i'll play it cool this time. You said that i should watch what i eat and drink , Do you think that Powerade could work when im skiing ? that would help me with the energy too.
I have been asking my Doctor for Anti-diarrhea medications but he don't want me to take it but when i asked for it i was in a bigger flare-up so i think that might be the reason , he said that it could be irretating for the colon.

One of them is my ''Best friend'' tongue and he does know i've been ill and such.
The other friend is from another city but hes nice and i enjoy spending time with him too
i don't think there will be a problem , if my symptoms is small that week i might not even have to talk about it .

I'm gonna call my Doctor tomorrow and ask for immodium or other anti-diarrhea meds.

Thanks for supporting me :-)
Posted 2/20/2012 5:43 PM (GMT 0)
The more you say about yourself and your passion to ski the more I think you should go.  Limit yourself as you feel you need to.  If you don't feel you need to limit your activity once you get up there then go for the freestyle etc. 

By drinking I meant no alcohol but sports drinks may be good for you too.  Immodium is over the counter here.  Use it only if you need it but if the doctor say don't then she's the boss right?!

Have fun. 

Posted 2/20/2012 7:01 PM (GMT 0)
Yes, NEVER let Crohn's limit your sport or fun! I don't in most cases, I would loose too much time & that is something we never know how much we have .

Matthew
Posted 2/20/2012 7:55 PM (GMT 0)

FunGuy said...
The more you say about yourself and your passion to ski the more I think you should go. Limit yourself as you feel you need to. If you don't feel you need to limit your activity once you get up there then go for the freestyle etc.
By drinking I meant no alcohol but sports drinks may be good for you too. Immodium is over the counter here. Use it only if you need it but if the doctor say don't then she's the boss right?!

Have fun.

Aint nothing like the feeling with the sun on my face upon the mountain with my ski gear on :-)
Actually i never drink alcohol, im totally against alcohol since it's bad for my disease but also because i had some bad experiences of it and how far it can go :-(
All my friends are partying with allot of alcohol but im trying not to follow.
Only thing that i know about sports drinks is that caffeine is really really bad for CD
but i read that powerade uses some B-vitamin and kalcium and all those stuff if im right :-P
And about Immodium all ask my Doc and tell him please only for a week ( shouldn't be to harmful )
Posted 2/20/2012 7:59 PM (GMT 0)

Matthew said...
Yes, NEVER let Crohn's limit your sport or fun! I don't in most cases, I would loose too much time & that is something we never know how much we have .

Matthew

Good words , actually im kinda lazy when im in a flare-up but now im totally in for this trip !
You do alot of sports ? if you do , don't you get afraid about kramping and have to run to the bathroom in the middle of a soccer game for an example ?
Posted 2/21/2012 12:51 AM (GMT 0)
Hi Danne,
I'm so glad you are going on your trip! Just listen to your own body and rest when you need to. You don't need to prove anything to anyone, but you DO need to have joy in your life!!! Have a great time. I used to love to ski...have fun for me!!
Posted 2/21/2012 8:46 AM (GMT 0)

gumby44 said...
Hi Danne,
I'm so glad you are going on your trip! Just listen to your own body and rest when you need to. You don't need to prove anything to anyone, but you DO need to have joy in your life!!! Have a great time. I used to love to ski...have fun for me!![/quote


Im glad that people actually care :-)
The only thing im concerned bout is the word ''Dhiarrea'' that seems to be kind of chronic.
Ill ask my doctor for anti-Dhirrea pills and se if it helps if he want to give me like immodium or such.
You don't happend to know how to avoid loose stools ?

Posted 2/21/2012 8:47 AM (GMT 0)
Oops , Last post got weird i wrote the lower part.
Posted 2/21/2012 3:53 PM (GMT 0)
the way to avoid diarrhea is to find the right medication plan to get you into remission, and/or to modify your diet so that you find foods that don't give you diarrhea. I struggled for years with loose stool that didn't seem to be addressed by the regular meds I was taking (5-ASAs) and my DR didn't think I was sick enough to go to stronger meds. I tried a gluten-free diet and POOF! about 2 weeks later the soft stool was gone and has not reappeared.
Posted 2/21/2012 4:24 PM (GMT 0)
Go! How wonderful to be 16 and having the chance to go skiing with friends! I envy you!
My only advice would be to find out where the loos (toilets) are, eat sensibly, and have fun. Don't forget to take your meds!

Have fun!
Posted 2/21/2012 9:09 PM (GMT 0)

kazbern said...
the way to avoid diarrhea is to find the right medication plan to get you into remission, and/or to modify your diet so that you find foods that don't give you diarrhea. I struggled for years with loose stool that didn't seem to be addressed by the regular meds I was taking (5-ASAs) and my DR didn't think I was sick enough to go to stronger meds. I tried a gluten-free diet and POOF! about 2 weeks later the soft stool was gone and has not reappeared.

Well i had kind of good stools last week. And i have been eating some bread that i usually don't .
Do u think that might be the reason ?
Posted 2/21/2012 9:13 PM (GMT 0)

Snivler said...
Go! How wonderful to be 16 and having the chance to go skiing with friends! I envy you!
My only advice would be to find out where the loos (toilets) are, eat sensibly, and have fun. Don't forget to take your meds!

Have fun!

Yes i only go skiing with my friends nowadays since my mom does'nt care for skiing any more :-P
Well i don't have problems with running too to the bathroom right now , i just have diharrea but i use the bathroom like any other person at the moment. and we got toilet in the house we are renting so it might not be a problem + im starting up with immodium 2 days before the trip. And usually i don't get kramps when i am doing things i usually kramp like when im at home watching tv etc.
Posted 2/21/2012 10:05 PM (GMT 0)
Did your dr say to start the immodium two days early?  I was thinking to use it only when you need it like before the trip to the slopes and home or if you get hit with D and don't want to leave a trail on the trail lol.  I'd be curious to know as I might follow the same protocol if it is sensible.  tnx youngster
Posted 2/21/2012 10:24 PM (GMT 0)

FunGuy said...
Did your dr say to start the immodium two days early? I was thinking to use it only when you need it like before the trip to the slopes and home or if you get hit with D and don't want to leave a trail on the trail lol. I'd be curious to know as I might follow the same protocol if it is sensible. tnx youngster


I called my dr and i was like : can i take immodium only for the days that im away from home ( because they don't usually wanna give immodium on chron's )
She said yeah thats okay basicly. she did not tell me how i should take it but i read on the package that the first time i should take 2 pills and then once a day in like 2 days and then i should'nt need to take it for a day or two .... That's right ? because i never took immodium before and im unsure how to medicate meself with it lol but ill try ... Whats the worst that can happend right ?
And do you know if immodium stop my stomach from grumbling ?
Posted 2/22/2012 1:06 AM (GMT 0)
 

I don't know about if the immodium will stop the grumble in you gut but it sure could.  Well since you are following directions I will leave you be.

Posted 2/22/2012 8:54 AM (GMT 0)

FunGuy said...
I don't know about if the immodium will stop the grumble in you gut but it sure could. Well since you are following directions I will leave you be.


Maybe the instructions is for people without Chron's , However ill notice that.
Posted 2/22/2012 10:46 AM (GMT 0)
You should go :-)
Posted 2/23/2012 10:41 PM (GMT 0)

Alexx said...
You should go :-)

Thanks !
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