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Just got back from ER! Update from previous post!

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Crohn's Disease
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Posted 2/21/2012 8:12 AM (GMT 0)
I gave in a few hours after I posted a thread on here earlier. I got my Humira shot & waited it out but I was too miserable. I was waiting to throw up, actually praying to throw up, because the nausea was so horriable. My mother took me to the ER(I hate going to hospitals because I don't want to seem weak but I went) & it took two doses of phenergan, 2 doses of zofran & 4 doses of morophine(sp?) to get it all under control(all in IV). That's all I wanted anyways was pain & nausea management. I got fluids too which helped A LOT with the dizziness. The doctors & my mom insisted on a CT & urine test just to rule out if my disease is causing all this.

   Turns out my white blood cell count is through the roof & I now have a severe bladder & kidney infection. They want to admitt me in the hospital if the antibiotics don't clear that & my sinus infection off. They gave me 3 antibiotics, Lortab 7? & a prescription for phenergan because apparently Zofran aint cutting it & neither is Tramadol.

  Of course I got nagged by one of the transport people about my weight and nutritional status after I told her repeatedly my Crohn's is flaring & my GI is taking care of all my nutritional needs. Then she kept going on & on about how I needed more protein, to eat more, try certain diets, eat yogurt etc. Apparently all Crohnies are alike in what they can handle eating and it's simple as a snap of the fingers to control your weight & diet while flaring. eyes

  I did find a silver lining in all this. One of the nurses I had was like "You're too young for all this mess aren't you?" I told her yes ma'am and she said "Crohn's sucks doesn't it?" That made me feel good inside for some reason. I guess because she wasn't being too cheery & saying "It could be worse!" like past nurses :-)

  Thanks to all who posted in the last thread & I read the comments! I'm just very drained & decided to do a general post. I'll try to reply back later on when I don't feel too drugged up wink The gastric emptying study showed I had a normal time over all but it took twice as lng as normal for food to empty out of the first part of my stomach? So now I'm on low residue/low fiber & the GI told me to drink plenty of fluids during my meals & so far it has helped ease my bloating 80%! Obviously not the nausea/vomitting but that's mainly from all the infections I have.

Posted 2/21/2012 12:12 PM (GMT 0)
I don't have a lot to say to this, but a sympathic hug from me :-/

I agree, it's nice when you get a medical professional who genuinely understands. The ones who say "it could be worse!" are probably trying to be nice, but what they don't realise is that a) yes, it could be worse, but it's still pretty f-ing awful and b) ironically enough, they have just made you feel even worse, albeit temporarily.

I hope you get well soon.
Posted 2/21/2012 3:30 PM (GMT 0)
Hi Keepingfaith,
I'm glad you went to the ER so you could discover the infections. Hopefully you will recover quickly now. It seems like we all encounter people who say ignorant things. When I was in the hospital last month an IV nurse told me her brother in law had his Crohn's under control completely with diet, and if I would only be more disciplined, maybe I could "beat" it too. I was too exhausted to argue with her, so I just said "Good for your brother in law," and left it at that. I do find it especially offensive when medical professionals say dumb things, but I stopped trying to convert the world a long time ago! I hope you feel better soon!
Posted 2/21/2012 8:56 PM (GMT 0)
I don't know why but I've found whenever I am dehydrated I get nauseous and often when I'm having a problem w/nausea the doctor or ER will determine I am dehydrated. And I do know whenever I get IV fluids for any reason I feel sooooo much better for a couple of days afterwards.

I'm hoping for you that this trip to ER and the meds bring you some real relief!! (((hugs)))
Posted 2/22/2012 4:37 AM (GMT 0)
Thank you guys! I'm glad I ended up going to the hospital! I have been eating my nausea meds like candy all day but I do feel relief from yesterday & I'll take 'feeling a little bit better' over staying the same any day. I drug out the Ensure & bought some gatorades tonight because I still am not hungry & very nauseated. I see my Rhuematologist tomorrow to talk about my progress with Humira(I have made progress!) & maybe adding Imuran so I'm excited because if I can get arthritis relief then that will be one more thing to scratch off my list of annoyances =)

@CrohnieToo: After about 10 minutes on fluids I was thinking "If only I could have a permanent IV line & unlimited access to IV fluids" :)
Posted 2/23/2012 11:31 PM (GMT 0)
Sorry Tsitodawg for not responding! The past few days have been really rough on my joints so I haven't been able to get on my laptop but my elbows aren't hurting today(just lower joints)so I decided to log on! :-)

  Thanks for the encouragement! I needed it! I'm honestly not that strong...AT ALL! I just remember a time when this all happened and I completelely shut down and even told one of my  teachers I don't believe there is a God that would do this to me(It was a big ordeal because I go to a 'Christian school'. Then I releazied, this disease is a blessing! I wouldn't have been able to meet amazing people without this disease, help others going through tough times, & most of all I've become more compassionate twords others, even if they tick me off(because with this disease, as you know, you can look great & feel like crud)because they could be going through something far worse than I.

  I think about you every time it gets around meal time! You are incrediably strong for dealing with the C-Diff, Crohn's, Gastroparesis etc! I would deffinately be very discouraged & I don't know if I could tough it out like you. Thanks for answering my questions too! It's all still feels very new when it comes to balancing medications, the disease & all the 'fun' stuff that comes with it but people like you keep me sane. Today, I managed to eat some chips to take my pills this morning. I still am bloated and full from the chips & my joints are starting to ache a lot more than normal but I'm guessing that's because of the weather.

  Well, I went to the Rhuematologist & he immediately brought up my gastric emptying study & said everything was normal but the half time, which he found weird because usually people with gastroparesis have the slowing in the first part of the stomach but my stomach was slow when it came to actually emptying into the duodenum. He then went on to sum it all up with "In healthy people the stomach has continuous contractions usually with food but in people who have gastroparesis the nerves usually don't work or the stomach isn't getting the signals for whatever reason so food just sloshes around in the same place....but you're not healthy person. I suspect this will go away when the Crohn's is under control."  I guess that's why my GI reccomended me try chewing more, eating softer, blander foods etc. I haven't seen my GI since he last admitted me in the hospital(sometime around mid Janruary) so I'll tell him how his plan is working out at my next appointment.

 Like I said above, when I see my GI I will mention all the things you mentioned to me. My GI answers all my questions and doesn't just make up crap as he goes along and I know my regular doctor would just say "Speak to your GI" So, I'm in the progress of making an appointment to see him. So far the regular phenergan the ER doc prescribed is working well. I guess I 'outgrew' the Zofran.

   I hope you had a better day & you are adjusting to the NJ tube well!

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