Posted 2/28/2012 8:47 PM (GMT 0)
Tsitodawg and Pb4, thank you.
@ Tsito. Thank you for your prayers, concern and advice. Yes, you are true, I deserve better treatment but I can't find it at the time being. I know that I decided to take myself off entocort and will try to taper off starting next week. I'm dreading this step and I'm quite sure that this will throw me into a new flare up. Being only covered with Pentasa is not enough, IMO, as it has never been effective alone. This will make me again a prey for pred as I failed all immunosuppressants and I was assured by both my doc and GP that I won't be able to take any biologics unless I have at least one visible ulcer in my intestines or the biopsies show granulomas Crohn's. I have only once had an ulcer and that was not Crohn's. I can't as a patient figure out what this exactly is and got fed up with giving my disease a name. But what I'm sure of is that when I was on pred and then Entocort along with Methotrexate, my symptoms were really under control and I was doing extremely well except for the proctitis pain no matter what side effects I got from them. I'm ready now after the worst stomach flare up I have ever had as a reaction for MTX to take it again as I could survive at that time and was not complaining from any intestinal pain for more than 6 months. However, my doc refused and told me that the biopsies showed nothing that necessitates this. I will keep my diet, activity and increase multivitamin supplements in the hope that I don't flare up and in the meantime try to find another second opinion who either seconds my doc or refutes his arguments all together.
Take care!