Posted 3/6/2012 4:27 AM (GMT 0)
I'm experiencing my 5th migraine in 6 days. My hair's falling out; I've got dry patches on my skin; my joints are screaming. And I think it's all from the cimzia. This all feels a lot like the problems I had with humira and remicade, and the best guess was it was medicine induced lupus.
I know I should get in to see my GI, but I'm afraid he's just going to say that since the cimzia is helping my gut and mtx is the only thing left to try, I should tough out all these side effects. When I saw the rheumy, I left feeling like I was a whiny baby. And the neurologist just keeps adding in more drugs to try to manage the migraines. The supplements I'm taking from the naturopath help, but it really just keeps the aches down to a low level hum instead of something more moderately intense.
I take my shots on Wednesday so I guess it will be interesting to see if all the side effects let up for a couple of weeks. I've been trying to keep track of everything, and I'm definitely noticing that things get worse the week or so before my shot, and then lets up for a bit. I guess that tells me I'm probably not looking at lupus.
I don't think this is a fair trade off! My gut is doing really well, but quite honestly I find it a whole lot easier to run to the bathroom 6-10 times a day than to creak and groan my way there, or feel too nauseous to move. I feel like I'm between a rock and a hard place. What do you do when you get to this place?