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Interesting question about terminal illieum

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Crohn's Disease
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Posted 3/20/2012 1:01 AM (GMT 0)
So does anyone have crohns in the small intestine at theend of the terminla illium..not sure of spelling sorry.. but I am told I have strictures and many people can live with strictures on a low residue diet. Will it always cause an obstruction? I am newly diagnosed and am very inquisitive. tongue   But just wondering about this disease. I am currently down to 10 mg pred and pentasa 4000mg a day
Posted 3/20/2012 2:22 AM (GMT 0)
I have had ulcers in the TI but not a stricture. It's true, many people do live with a stricture there. You might want to talk to your DR about how big the opening is, how often it should be checked, and what to do if you think you are obstructed. There are people on the forum who can give you good advice regarding diet and urgent care in this kind of situation.
Posted 3/20/2012 2:37 AM (GMT 0)
There is no "Crohn's diet", no one diet works for all. Crohn's is a very individualistic disease, what food does a number on me may be a blessing to you.

Be sure to chew whatever you eat THUROUGHLY. Raw vegetables can be a real problem for many. Many have problems w/dairy products and many have problems w/gluten. But many can tolerate or do well on any or all of the above. You have to find out for yourself what does and doesn't "work" for you.

Fruit skin such as on grapes and apples can be a problem w/strictures. Tomato seeds and grape seeds as well.  Popcorn is usually not a good idea.

The best advice I was given about a diet for my Crohn's was given to me at Mayo Clinic after my resection. That advice was to eat anything I wanted to. My gut would tell me what it did and didn't like.

Posted 3/20/2012 1:17 PM (GMT 0)
That's great advice from C-2. My TI was removed in '82 but I did develop a stricture at the ananstamosis site post surgery. It finally got bad enough 2 years ago that I needed it removed. I never had a full blown obstruction in all those years. But I learned early on what foods I had to avoid, not necessarily a low residue diet. In fact I swear my list of "agreeable" foods changes with the seasons -- my body just can't decide what's ok and what's not.
Posted 3/20/2012 5:31 PM (GMT 0)
My Crohn's is located in the terminal and distal ileum. I had strictures that were resolved with Prednisone. If your stricture is from inflammation, then medications like Pred or the biologics can help bring it down. If the stricture is from scar tissue than you can either live on a low residue diet indefinitely, or have surgery to remove it. Ask it it is from inflammation...if you go into remission, then you can advance again to a normal diet.
Posted 3/21/2012 8:15 PM (GMT 0)
My crohn's is in my terminal ileum (or I guess was in my terminal ileum since that was removed). I was diagnosed in 1989 and was first told I had a stricture in 1998. I didn't need surgery to deal with it until 2011. Some folks need surgery shortly after being diagnosed.

Stricture doesn't always result in obstruction. I was never fully obstructed, but in late 2010/early 2011 I was having very slow moving bowels and problems with constipation.

The more you flare, the more inflammation you will have. While in an active flare, this strictured area will be even narrow. That's when a low residue or even partial liquid diet would help. If it gets to the point where you are having problems even when not in a flare, then it's probably become too narrow to treat with medicine or diet.
Posted 3/25/2012 10:25 PM (GMT 0)
Thanks all for your advice..:)
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