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Pred the ugly two edged sword!

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Posted 7/2/2012 5:48 PM (GMT 0)
O.k. so it is day 4 off of Pred since March. Yes, I tappered really slow but I'm hurting......every joint. I remember doing this years ago but can't remember how long it takes to get back to normal.  Any suggestions on what to do when your body hurts all over. Move more or less? Took some Arthritis Tylenol and it aint' touchin it. Thanks!
Posted 7/2/2012 7:30 PM (GMT 0)
Why did they take you off,know its not good(the pred) but people have told me that endocort EC is a steroid but works only on the area of inflamation(usually in the small bowel for CD). I can't remember but 2-4 weeks before you get back to "normal" .Unfortunately people with CD are at risk(not saying they will get it for sure) for arthritis...maybe you had this before and didn't feel it b/c the pred reduced the inflamation. I'm guessing too that the Doc said no Ibuprofen or Naprox. sodium, which might help the pain. I'm not sure if movement helps or not....If it was true RA, movement helps, OA, movement makes it hurt worse. I guess a call to the doc is in order. I know about pred...I take it for both CD and MS. I wonder if my bones are Swiss cheese at this point,lol.
Good luck and I hope you feel better
Posted 7/2/2012 8:16 PM (GMT 0)
Hugs to you heather!  I hope your taper pain goes away soon.  Have you tried heat or ice on the joints that hurt the most?  Or maybe an epsom salt bath? 

Though I have the opposite affect from pred, having pain at higher doses rather than as you taper...I know just how miserable it can be.  I wouldn't wish it on anyone!

Posted 7/2/2012 8:50 PM (GMT 0)
Hi Flowery! I'm having this problem too. Why does this happen? Im still on pred 20mg but tapering. but everything is aching and the pain and soreness seems to fluctuate. The tylenol doesnt do much for me either. Any chance it is the prednisone and not arthritis? My joints have started cracking every where. It wasn't this bad before the pred. The only thing that helps me is sitting out side in the heat.
Hope you feel better soon
Posted 7/2/2012 9:09 PM (GMT 0)
I think the prednisone can have an effect on your bones, weakening them. I remember being on it for an extended amount of time back when I was commuting an hour to grad school - I would ache soooo bad getting out of the car after the commute, and I was only 24 at the time! I noticed that this went away after being off of it for a few weeks. Heat and Tylenol helped - loved hot baths. Good luck!
Posted 7/3/2012 4:40 AM (GMT 0)
Myrne: that's why I said I wonder if my bones are swiss cheese at this point LOL. prednisone interferes with the making of new bone(weakens the matrix). You are correct:)
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