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Posted 9/6/2012 4:43 PM (GMT 0)
Thank you, guys, for having me. Even if I'm a pain in the neck, difficult, chippy, awkward, abrasive, hypersensitive, annoyed, irritable, etc. etc.... >_>
Posted 9/6/2012 6:38 PM (GMT 0)
mwah
Posted 9/6/2012 6:43 PM (GMT 0)
I enjoy your company! And you're not any more of a pain than the rest of us are. :)
Posted 9/6/2012 9:39 PM (GMT 0)
Believe it or not, I look forward to your posts. You have a great sense of humor and you are very smart. Any of us who have struggled with this stupid illness can related you your pain and frustration.....no need to apologize. I for one, like having you around.
Posted 9/7/2012 1:57 AM (GMT 0)
The cockles of my heart are duly warmed.

Thank you, folks. *group hug* :p

(I do sometimes feel I am not always the most loved and wanted person in the world. Can't imagine what might have given me that impression today.... not for the life of me, no... :-/)

Anyway, I know I am not an "easy" person, that I'm not good at giving my opinion in an manner which doesn't mortally offend at least one person, somehow, somewhere. I have tried to become more emollient, but it's 'worked' in the same sense that coating barbed wire with marshmallow works <_<.

And, of course, I get very down and impatient at times. Down over this crappy disease, impatient with those who think they have the answers.

This is nothing to do with HW this time. In fact, that's why I'm thanking you guys - for somehow tolerating me enough that I'm still here over 2000 posts later! :p
Posted 9/7/2012 9:04 PM (GMT 0)
I welcome everyone..There are different personality types and people on here..I enjoy everyone..We just share the same terrible dd in one fashion or another..I have somewhere to turn rather than dealing with this dd by myself..The disease is as individual as the people..LOL

Posted 9/8/2012 1:05 AM (GMT 0)
Thanks, cindy :p
Posted 9/8/2012 4:11 AM (GMT 0)
NCOT
I just want good things for you and I think you know that. That is why I make suggestions. One time I would like to hear I tried it and ......
Also this DD is a bitxxx and most folks have no idea. You reflect openly what many think (IMO).

When I look at another person who suffers so much it scares me. I want you to heal and I want to know I can help myself. It scares me.

Also you ask for advice, but somehow I do not see you trying too strong some really smart folks advice.

Trust me, there is nothing more tiring than being sick everyday. I am not saying I have had as bad as you, but I was quite sick for many days in a row. So even though I have never been as sick as you, I somehow feel a bond that others can not understand.
So, please feel free to say I am wrong, full of ..,
You teach me, and I hope that I encourage you to try one of the non pill approaches one day. There are many and they all claim to work. But I know, if you will not stay then it will not work, no matter what diet you select. I just want you to try one. Just to see.

Cheers 2 u NCOT

Dave

Posted 9/8/2012 4:13 AM (GMT 0)
oh and healing ((((((hugs))))) back
Posted 9/8/2012 8:38 PM (GMT 0)

NiceCupOfTea said...
Thank you, guys, for having me. Even if I'm a pain in the neck, difficult, chippy, awkward, abrasive, hypersensitive, annoyed, irritable, etc. etc....


"Pain in the neck"? Maybe, but we might need feisty posts sometimes if that is what is necessary to help keep the forum honest. I agree when you said that there are wannabe zealots, esp on the UC forum, who are trying to hijack the forum into a cult. Not with general pros and cons about alternatives vs conventional meds but their particular alternative protocol. They own the way, the truth, and the life and it must work for everyone otherwise it was not followed correctly.

I appreciate how lucky I am to be able to get relief from alternatives. But I see so many posters here who have tried everything from conventional meds, alternatives, off-the-wall, I mean everything, without any relief at all from this disease. I just count my blessings that something works for me and NWIH will I ever judge another IBDer.
Posted 9/9/2012 1:34 AM (GMT 0)
Thank you both! *sniffles* :p

@dave - I don't think you're full of you-know-what. In fact, as a role model for the SCD approach, I'd say you're pretty much exemplary. If somebody on this board wanted to know more about to follow the SCD, I'd happily refer them onto you. I can give an outline, but it's not the same as knowing the diet inside-out from personal experience.

I doubt I'll ever try any diet, though. I think it's something which suits some people but, for me, not so much. Okay, this next bit is rather embarrassing. Among the many things I can thank Crohn's for, one is an eating disorder of sorts. It took the form of eating less, counting calories, being scared to put on weight (even though I was already underweight) or to eat more than 1200 calories a day, etc.

I got out of it. And I can thank one person for that; who, it doesn't really matter. But over the course of a year, and with the help of Pred, I ate more and put back on some needed weight. However, I was still vulnerable in relation to food, and my food anxieties took on a new focus: 'healthy' eating in a nutshell, I suppose. I was very vulnerable to the 'carbs are evil' sort of messages.

I could have given in, out of the burden of sheer guilt. But something in me fought back. I sensed it would not be a healthy path for me to go down. If you can follow the SCD or Paleo diet without becoming obsessed with food, fair play to you. But for me, I think it would lead deeper into eating disorder territory, and that's not a route I want to follow.

I hope my resistance to changing my diet makes a bit more sense now. If it's any consolation, I do not have a strong gut feeling a change of diet would work for me anyway - no dietary changes I have made previously have helped even slightly. So I think it's rather unlikely I'm missing out on remission - truthfully.

@BabeintheWoods - Good post. If I had to sum it up, meds and diet each have their pros and drawbacks. And this...

They own the way, the truth, and the life and it must work for everyone otherwise it was not followed correctly.

... is all too true for some folks, I'm afraid. That is, the "otherwise it was not followed correctly" bit. I'm sure it's not the intention, but it ends up subtly placing the blame on the sufferer for failing to respond.

Anyway, fair play to all those who've found something which works and are happy with it. I hope I have got the chippiness about diet out of my system for the final time... >.>
Posted 9/10/2012 2:57 AM (GMT 0)
That is insightful and honest. Another example of teaching me.

But the fact remains your current program is not working for you. Forget food, is there no other med combinations? Worms?Probiotics (capsule), activated charcoal... If there was a combination of pills/supplements that would work...
Please do not give up, You have suffered enough
Dave
Posted 9/10/2012 5:02 AM (GMT 0)
You all are wonderful. Just reading this whole thread made me feel happy. NCOT, (((hugs))). I've really, really enjoyed your posts since I first joined the forum earlier this year. I like your sass and your friendliness. You say a lot of things that I think are hard for people to admit but all feel at one point or another. At least, almost every emotion you've expressed I've gone through at one point or another, and it is so nice to say, "Hey, I'm not the only one!" Thank you for that.

And for everyone who has been supportive to everyone on HW. I'm amazed at how much support and love and respect I see expressed here.
Posted 9/10/2012 6:40 PM (GMT 0)
Hey NCOT

I just wanted to let you know that since Ivy stopped posting the daily post, I've kinda fallen out of touch with you, but I think of you and read your posts. Like others have said, you are honest, and the honesty you show helps others here be honest. You don't hold back, which makes more people understand you and makes more people feel like they aren't alone in their thoughts and feelings.

If you ever want to chat, let me know! I go on chat in the evenings and during the day when I don't have anything else to do.

Hugs!
Becky (aka Monkiray)
Posted 9/10/2012 8:38 PM (GMT 0)

NiceCupOfTea said...
Thank you, guys, for having me. Even if I'm a pain in the neck, difficult, chippy, awkward, abrasive, hypersensitive, annoyed, irritable, etc. etc.... >_>

Bah, I don't see you that way at all. In fact, I think you're awesome NCOT, you're always responding to people's posts and are always extremely helpful.
You're intelligent and compassionate for others and I like that! I'm on the other end of the spectrum with my adjectives to describe you. smilewinkgrin
Posted 9/12/2012 1:39 AM (GMT 0)
*more sniffles* Group hug, again! :p

@dave - Have to admit, I have not tried absolutely everything. Have virtually exhausted all the conventional meds, so that leaves only stuff outside the box, such as LDN, MAP antibiotics, and, yes, worms :p (In theory at least; in practice worms seem to be virtually unobtainable...) At the moment I'm faced with deciding whether to carry on down the path of trying further meds, or whether to just have surgery, which in my case would be a lot more than a simple resection, involving as it would the removal of my entire colon and an ileostomy.

Most people would probably think I'm crazy to not want to try further meds, given what's at stake, but truth to tell I'm beyond tired of trying med after med. If surgery was a cure for Crohn's, I'd be on the operating table tomorrow; but because it isn't I just don't know what to do at this juncture.

@Becky - Hi! :p

I'd be happy to speak to you in chat. I never go in there because on the few occasions I've tried, it's been empty! However, I'll start checking it again. I keep GMT hours; well, you probably know that already, given that I live near London <_<. You'll be five to eight hours behind me, depending on which state you live in.

Also, if you have a Facebook account, I'm on FB nowadays, as is ivy. I don't really do a lot on there, but would be happy to add you as a friend. At least I've actually spoken to you, which makes you more of a friend than most of my FB 'friends' <_<.

@Datawraith - For once I am lost for words. Not many things make me speechless. That is all :p
Posted 9/12/2012 2:40 AM (GMT 0)

NiceCupOfTea said...

@Datawraith - For once I am lost for words. Not many things make me speechless. That is all :p

Hehe, big, massive, gigantic, epic hugs NCOT! yeah
Posted 9/12/2012 2:48 AM (GMT 0)
*crushed* >_>

*nurses broken rib* Er, thank you, but how about a handshake in the future?! :p
Posted 9/12/2012 3:27 AM (GMT 0)

NiceCupOfTea said...
*crushed* >_>

*nurses broken rib* Er, thank you, but how about a handshake in the future?! :p

Haha, you bet NCOT. Going forward, very weak handshakes. :-)
Posted 9/12/2012 8:21 PM (GMT 0)
Wow. I just got back from a trip and thought you were saying goobye to the forum when I read the topic.

I'm really relieved that you are going to be around bothering us with your "pain in the neck, difficult, chippy, awkward, abrasive, hypersensitive, annoyed, irritable" some more time.

I like most the "awkward, abrasive" part. You forgot sarcastic, ironic, intense, direct, "out of the box" and othes. I like those too.

You're an asset here! Warm hugs for you.

Daniel

Posted 9/12/2012 8:44 PM (GMT 0)
Cheers, Daniel! Seriously, thanks to everyone. I have got more nice comments than I could have anticipated, not that that was what I had in mind when I first posted this thread. I'm genuinely glad to find that at least some folks like me the way I am...

Group handshake! :p
Posted 9/13/2012 1:05 AM (GMT 0)
NCOT

FB will probably be the easiest way to chat, aside from me trying to jump on HW chat a bit in my afternoon, your night.  I see you respond to a lot of posts about noon-1pm my time, so I'll watch for you.

I look forward to chatting with you! :) Hugs!

Posted 9/13/2012 5:30 AM (GMT 0)
Thanks, and hugs to you.

dorri
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