New to forum, question

We're delighted your daughter has been growing and feeling good since her CD Dx. But we also understand your concern.

None of these medical tests are 100%, they are just the best we have available. It is not at all unusual for our blood work to come back fine w/no indications of disease activity and yet have another test such as a CT scan or scope biopsy or the calprotectin indicate there is disease activity going on. Currently it may well be that the calprotectin is indicating some disease activity just beginning.

Keep any eye on the calprotectin trend for disease response to treatment. You might also want to consider easing her diet towards bland, soft foods, no seeds, no skins and reduced wheat to rest her intestines a bit as her gastro determines what changes in her treatment plan he considers wisest.

Good luck, God bless and (((hugs))) to you and your daughter.

 

Thanks a lot for good words and quick response. I have not considered changing her diet, that is not being mentioned here in Germany but I guess it won't hurt. Thanks.

Each person is different with their diet. Some GI's will tell you that it doesn't make a difference, but it honestly does. It won't cure it, but it can make it easier. It takes some experimentation to find what works, and everyone is really different. The best thing is to keep a food journal - write down everything that's eaten and then the effect that it has. Many foods that will cause problems or pain, you'll be able to tell in the first few hours.

The SCD diet has been effective for many people, but for me it didn't work at all. Other people are or become lactose intolerant (milk) or gluten intolerant (wheat). Even if they're not completely intolerant, they can make you feel worse or gassy. One way to test this is to remove all from your diet and then after a few days, try just one (a milk product OR a gluten product) and see what it does. I drank soy milk for an entire year because someone had told me that milk makes it worse, but it made absolutely no difference. For others, though, milk is a killer.

The things that bother me most are carbonation and chocolate (which as a 26 year old female, the latter has been quite traumatizing!!). I don't drink, but I hear that alcohol can really cause problems, too. Since your daughter is so young, I'm sure that's not an issue now, but it might be good to keep in mind as she gets older.

Good luck!!! ((hugs))