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what am I doing wrong???

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Crohn's Disease
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Posted 10/23/2012 12:35 PM (GMT 0)
Ok here goes, I am on pentasa 500mg x 2, four times a day. I can go maybe three days and I have normal bowel movement. last week I lost control once and this week once. It was weird on sunday I got up I was a little nauseaus so I had two waffers for breakfast I felt fine, lunch I had a sandwich. Two slices wheat bread, 1 slce chicken plain I slice swiss, I had 4 normal bowel movemnet in probaly 2 hours. Then I went to kentucky fried chiken, I had 2tsp potates 2 tsp mac and cheese ( eat this at home no prob) I chicken leg no skin. And I lost control I have been sick since sunday. And lately my bones hurt I had my bone density scan and there is improvement in my hips and lower back but my arms and shoulders are worse I am osteo pena.When I looked on line it said this bone thing is part of chrons, should I have patience with the pentasa, I have been on since August And I do have more good days than bad. Any advice would help thanks in advance.:)
Posted 10/23/2012 1:54 PM (GMT 0)
Pentasa is not the greatest med for inducing remission, but it works well for some in maintaining remission. Perhaps you need something more. I think your issues deserve a discussion with your DR.

I will say that your diet as described in your post is not terrific. Have you tried to eat less gluten?

When you say you have bone pain I am concerned. Osteopenia doesn't hurt.
Posted 10/23/2012 2:48 PM (GMT 0)
Yeah I tried to have a grilled burger and fries yesterday but gave me major gas but better this morning. I geuss I should stick to my Chicken breast and Avacado sandwichs it stinks because im so hungrey all the time now that I started my medicine. I feel bad for those that have pain .....Im sorry sad
Posted 10/23/2012 5:13 PM (GMT 0)
I have to say if I ate the foods you listed, I would be in bad shape for days. I can't handle wheat bread and KFC even without the skin has an enormous amount of fat that makes me ill. I also find that fast food places often use meat tenderizers that simply tenderize my insides.

It sounds like you are on maintenance meds (pentasa), but are not in remission. You really should consider further discussion with your doc on gaining remission. The bone issues should definitely be addressed. Hope you get some more help
Posted 10/23/2012 7:01 PM (GMT 0)
"I will say that your diet as described in your post is not terrific"

What are you talking about, it's terrific. It had me salivating, reading it. ;)
Posted 10/23/2012 9:36 PM (GMT 0)
Isn't this food you mentioned marinated or seasoned? How can you make sure it is not? For me, eating only one piece would cause me severe cramps and d.
I def agree w other fellow Crohnies. Pentasa 4g alone is not enough. You need something else to induce remission.
Hope you feel better soon:)
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