So Frustrated!

Ok so here's the deal.  For years now my lip, cheek, throat swell and my throat feels all scratchy like i've been yelling all day and it gets difficult to swallow.  My GI says it's crohn's in my mouth and esophagus.  It's usually at it's worse the week before my remicade infusion which I get every 6 weeks and at a higher dose.  Oh and I also run fever.  My stomach is so f-ed up.  I have massive D which is upwards of 20-25 times a day.  In the middle of night, all night, and sometimes I don't make it which makes for great fun at 3am.  I've lost weight not much but enough to drop a pant size.  I am hungry but am afraid to eat.  I eat cream of wheat in the morning, a slice or two of turkey lunch meat for lunch, and a little bit of dinner.  I just don't feel well.  I've been on EVERY SINGLE CROHN'S MED.  Nothing works!  My GI doc told me today he wants to combine 6mp and remicade.  Uggg I've been on 6mp 3 times.  Everytime I got to 100mg, I was taken off b/c my blood counts would plummet.  The last time my rbc dropped to 5.9 and I needed a blood transfusion.  This is insane!  I just need to vent and maybe if some of you out there have any advice I'd greatly appreciate it.  Especially this whole facial, lip, throat swelling thing.  Thank you guys :)

Thanks peacewithcrohns.  How is the person doing on the imuran and remicade together?  I was googling them last night and I was reading about a scarey rare t-cell lymphona that can occur while on two biologics together.  Especially when one of them is 6mp.  I went for my infusion today and my lip swelling and throat have gone done greatly.  It's still there but not as bad.  I think I'm going to try going gluten free for a few months.  See if that helps at all.  At this point I'm desperate to try anything for some relief.  As far as the salive goes, I have a ton of it.  Sometimes I choke on it.  It's the weirdest thing that I can't even explain it.  Thanks for the response.