Crohn's-Colitis?

I usually post over in the Ulcerative Colitis forum as that's what I've been told I have for the last 10 years. A couple prometheus tests have also pointed to that as well. Does anyone have personal experience with Crohn's-Colitis? From what I understand it's a form of Crohn's disease that only affects the colon. I met with a surgeon yesterday because I have a 20cm section of my colon that's riddled with pseudopolyps and bleeding but the rest of my colon including my rectum is perfect. The bleeding is causing a bad iron deficiency issue with me and we can't get my ferritin levels to raise. The inflamed section starts at 30cm and finishes at 50cm in. I've had a recent cat scan which showed nothing "worrisome" that would point to Crohn's as well...Only a slight increase in Mucosa on the wall of my ileum. The surgeon isn't convinced yet that I have strictly UC. I've also had a partial fistual in the last two years which required surgery. I know that's also more common in Crohn's. The surgeon is getting all the pathology slides and test results so his team can look for themselves before a surgical decision is made. I also have to swallow the camera pill to. Can anyone provide some info on Crohn's-Colitis that may help in deciphering if I have it or not?

Thanks
Gordon

I have crohn's colitis which has been active for me since getting sick 21 yrs ago now.

One of the major differences (via colonoscopy) is with crohn's the inflammation is patchy (healthy tissues lined with inflammed) with UC, the entire area will be inflammed with no patches...also with CD the inflammation can go through the many layers of the mucosal lining, with UC inflammation stays on the surface of the lining only...those are 2 key things they should be searching for, even though the patchiness is a given, sometimes the surface lining thing may be sketchy since it's not 100% that every CDer has more than one layer of the lining affected but definitely the patchy inflammation is the number one clue/difference between UC and CD (regardless of where the CD is affecting the GI tract).

Often the same meds used to treat UC are used to treat crohn's colitis as well...targeting inflammation in the colon, so even if your DX was confirmed as CC, you'd likely still be on the same meds. Best of luck!

I had a partial fistulotomy (most painful experience ever) and the surgeon I met mentioned that's more common in Crohn's. As of now he's leaning towards taking out that section of my colon barring any different findings when I get him the info he's asking for. Has anyone had a section of their colon removed? What's the pain/recovery like?