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I seem to be struggling again

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Crohn's Disease
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Posted 11/13/2012 11:24 PM (GMT 0)
I've had a good run of about 6 months where I've been doing quite well. The last several weeks my reflux has gotten out of control....lots of burping, nausea, stomach pain, etc., to the point where it almost doesn't matter what I eat-I spend most days with some sort of pain. Then I went into one of my miserable constipation cycles and have had to take either Senokot or Miralax practically daily. I think that when I slow down eating, my motility slows as well, so it all goes downhill together. I saw my GI yesterday, and he ordered a ton of bloodwork...Comprehesnsive profile, CBC, CRP, ESR, Iron, Ferritin, Folate, and B-12. He also is doing this endoscopy with a ph sensor to measure the acid in my uppper GI tract. So I am glad he is taking my symptoms seriously, but do you think he is going overboard? I know this is stupid, but I'm almost worried that the blood work will all come out normal, and then I'll be embarrassed that I'm whining. I usually can tell when I'm anemic, and I don't think that's the issue this time. My husband and best friend demanded that I go see the GI because they think I wait too long. Maybe I just don't want to think of being in a flare all over again. Anyone else doubt yourself like this??? Thanks, as always for listening.
Posted 11/13/2012 11:30 PM (GMT 0)
Oh my goodness, I do all the time. Even when the pain is awful and I'm bleeding and can barely eat, I still worry that everything will be negative and that I'll just be told that I'm being a wuss and just have to suck it up and deal with my disease. I haven't really had that happen yet, but it still makes me nervous every single time. Whether it's just a GI appointment or going to the ER, I feel like there has to be something major or else it's a waste of money and time and that I'm just turning into a hypochondriac. But listen to your husband and your best friend. They know you, and they know when it seems that your body is off. And if your doctor is running all those tests, he believes you. Always listen to your body and don't doubt what it tells you!!! We're so used to getting in awful flares and sometimes almost dying before we break down and go to the ER, so when it's bad but "it's not as bad as it's been before," that doesn't mean it's not bad and you shouldn't try to nip it in the bud. Lol, just giving you the same pep talk my husband and doctors give me. :)
Posted 11/13/2012 11:50 PM (GMT 0)
Thanks!!!! I was ridiculously ill last winter, so now it doesn't feel nearly as bad as I was then, but I'd be saying the same things to you. I think I have a fear that my GI won't take me seriously when I really need him if I complain too soon...like the boy who cried wolf. Thanks for the support!!!
Posted 11/14/2012 2:18 AM (GMT 0)
I also do this - and I think about what the DR's options are and cross them off my mental list and then I'm left with, what is the point of calling the GI, he can't do anything anyway! FACEPALM.

It's alarming that your reflux suddenly flared and I'm glad your DR is investigating.
Posted 11/14/2012 5:56 AM (GMT 0)
I worry that I'm paying for unneccessary tests. I do not worry if I am feeling bad yet they come back normal! And neither should you!!!
These tests are not always accurate and you know your body better than ANY test out there.

I did a small presentation on invisible illnesses the other week and I used this quote, it seems quite appt for this thread;
"You must believe in your self, acknowledge that your symptoms are real. Otherwise everybody else's doubt will end up in you doubting yourself!"

I hope your tests reveal some answers for you and you start to feel better very soon!!!
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