Crohn's Diet ?'s

I have been following a low fibre low residue diet this past few months . I wouldn't say that the diet has been 100 percent better but it is much better. I am still eating something that triggers my gut but have yet to figure out what it is. I would suggest seeing a dietician to give you a guideline of what may and may not be good for you to eat.

misspriss82, the info on food choices and inflammatory diseases is confusing. My advice is to listen to your body. With regard to wheat, you say you tested negative for a wheat allergy - what does that mean? What testing was done? You might find this Wiki helpful.

I just started seeing a nutritionist and she is trying to help me and also helping to give me supplements that my body might not be absorbing. I'll be interested to see what she says, considering my first GI dr told me that a nutritionist wouldn't be able to help me. I've heard from some don't eat a lot of fiber and some say to eat a lot of fiber.
At this point, I'm willing to try anything because I have been in a lot of pain recently and my dr hasn't given me anything other than 6mp, Prednisone (when needed) and Zofran. I have nothing for pain and it's horrible!

kazbern- Testing for wheat or gluten allergies & for Celiac Disease was the first thing my GI dr did before I was diagnosed with CD.

Hey! Just wanted to give an update on what my nutritionist told me!

Kazbern: I thought you might find it interesting that she gave me a list of all "anti-inflammatory foods" to eat and not to eat. One of the things that causes inflammation in the body? Gluten & wheat.

She's basically given me this list to eat and not to eat, but the "to eat" list is a lot of veggies. It makes me nervous to eat high fiber foods. Last week I decided to comply with the diet just to see if there was any change (I have nothing to lose), and I got so sick! I ate egg whites and turkey bacon for breakfast, a spinach salad with grilled chicken breast and a cucumber for lunch and a gluten-free chicken breast with spinach/feta for dinner. I was vomiting and having diarrhea all night. Horrible.

I am not certain I'll continue to go to her because as you all have said, I know what works for my body and my Dr also has a good insight on what is good for me along with my meds.

Thanks for your input!! :)

Kim - when you switched to the newer diets, what kind of veggies did you eat? I am trying to not eat processed foods right now and eat "Clean", but I find that a lot of the vegetables cause more issues and I get sick of eating the same ones over and over again.

I ´ve diagnosed 2 years ago, and I am still trying to find a correct diet.
Before starting to feel bad, i used to have the most natural as possible. Fullfiled with brown rice, vegetables, light protein and no preocessed food or fast food. Since the problems began, I found much more digestable to take a fast food than taking my beatiful brocolli, brown rice and cooked chiken for lunch. As for being processed, the body did much less efort to digest. So much less pain due the process.
As for D takes away much of the layers of the intestin, the meds where doing nothing. I went to a molecular neurology doctor. She made a test and comproved that I had Aluminium intox. It is very serius and one of the things it makes is to increase the inflamation. So after taking that off, and taking minerals and vitamins on in the vein, I can eat fruits again. Wich can make me very happy.
I don´t take processed food that contains alot of spice, but bread and peanuts I do very weel.
I know that sugar, and chocolate processed food can make my belly heart all over it, but for god sakes, an ice cream every now and then cannot kill me.
I don´t eat apple, it is a very good fruit, very healthy. But it cleans, i can feel the hole digestion process till it go down. It takes no more then a day.
I eat a lot os potatos, cooked. Rice is very good, but not the brown one. I eat pasta, all kind of it, but only with some light tomato souce. nothing fancy.
Not fried food at all and no smoked proteins at all!!And no cow or pig meat, I love it, but it doesnt feel right to eat something that will stay on my intestin wich are inflamed.Only white meat.


27yOld, gave up the meds on remission. I know my body bild this thing up, and that is something my own body can fix. A lot of care of what your mind belive. I will never live the same way, but that should be a good thing!

Seven years ago I was diagnosed with CD in the lower 8 cm of the rectum and had two massive rectal fistuals with ctons installed.  I was put on pentassa and started the SCD diet immediatley and followed it 100% without cheating.  GI wanted to put me on ramacaid but I didn't want to turn off my immune system at this point, at least not yet since the only sypmtom I had was the fistula. I had no D or pain. 

After 8 months on the diet and pentassa, both fistulas healed up to the point where the ctons had to be removed so they would heal completely. The surgeon and GI both said they haver never seen fistulas as big as mine, heal from taking pentassa alone.  Now, was it the scd diet or the pentassa or the combination of the both that healed them?  I guess I will never know.   GI says what ever you are doing, just keep it up because it has worked for you.  It has been seven years and I still follow the scd diet, but not quite as strict as before. Now I will eat a piece of bread now and then, or a sweet potatoe once in a while, and mabe a pizza once every three months or so, but other than that, I still follow the diet and take the pentassa, and I have not had a flare or a symptom from my CD in 7 years. 

I am on Gluten Free, Vegetarian, Lactose Free foods. I don't know if the Gluten Free helps but the lactose free and Vegetarian do but just keeps me from being sicker.

NY sooner, that's a great story. Thanks for sharing!

Most on SCD struggle with high fiber diets. In fact most, like me, have low fiber for years. I still only eat well cooked veg and frequently puree the veg into "gravy" using a stick blender. SCD is neither high or low fiber. As other have said you need to listen to your body and make adjustments. I have been feeling poorly the last month so have gone to a high protein, low veg diet which is calming for me.

SCD does not specify high or low carb because one size does not fit all. I had to go low carb before SCD worked for me, but for others it might make them sick.

SCD is executed in so many ways. Some are vegetarian, others no dairy, others no eggs, others very high meat, low fat and very high fat, some no night shades,...... All can be done SCD complaint.

SCD is a list of ingredients. Very few can eat them all (I can not) and does not specify ratios (carbs, protien, fat). Because we are all so different there is much you have to figure out while still staying fanatically compliant. This is tough and I think a lot of folks come to the conclusion that diet has no impact when in reality they have not figured out the very best for them.

It is tough for some to get to remission (I took 8 months of still feeling crappy), but if you can figure it out it is so worth it. I do not mean to make anyone upset but it is my belief that everyone's health could be improved by eating what is right for their body. Please note, I am not saying SCD is the answer, just that I really do believe that there is an optimal way of eating for each of us and unless we really focus on figuring it out, we are not operating at our best. Habs, you are eating pretty much 100% NOT SCD, but it works for you and IMHO that is what is important.

After three years on SCD I am still making changes to what I eat as I still go through periods where I am not 100% but there have been so many times when I am riding my bike and enjoying life that I thank god for SCD and the author who took the time to do the research and publish.

I just got back my results from my pillcam and the doc could not find anything wrong with me. The ulcers that were so easy to see in the terminal ilium that gave me the Crohn's diagnosis are healed.

The doc said if all he had was current information he could not give a diagnosis of CD. Given the insurance issues in the US I think I am going to push for an official change to the Dx (so long as I can still get my pentasa).

Have a Happy and All ways improving Healthy New Year

Dave

... Medical doctors and their assertion on how diet doesn't effect disease.

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I don't think a particular diet will work for everyone as everyone with Crohn's is different so even if you speak to someone who has Crohn's and has had fabulous results with a certain diet it may not work for you at all or make you feel worse.
Have you tried keeping a food journal to see what foods make you flare and which don't? Maybe you can find the healthy foods that work for you that way.