Posted 1/16/2013 3:11 PM (GMT 0)
I am feeling very frustrated today. I went to my regular GI doctor last week and she wants me to go see another doctor - more of a specialist in the Crohn's field. Quick recap - diagnosed in May 2008, resection in November 2008 and been on Humira since January 2009. Was taking the Humira every other week and now I am up to every week. Still have symptoms. In the bathroom all the time and still have pain. I can't figure out what foods affect me. I can eat something one day and be fine and the next eat the same thing and be miserable. I have been to a food allergist and tested negative for any food allergies, including gluten and silliac disease. The Humira is starting to give me what I explain as a "brain fog". I feel like I am forgetting a lot of silly things that I have never done before. Some days I would rather just not eat anything than take the chance of eating and paying for it later. I am tired of doing tests that show nothing different. Part of me doesn't even want to mess with another doctor. I guess I am not really asking a question from anyone - just frustrated and felt I needed to vent to people that understand. Thanks for listening.