pmedic - quitting the Align - drat

I am so sorry it didn't work for you! I wonder if it is because I am taking two types of probiotics... I don't blame you for not continuing if it is not helping! This DD is so individualized, it is crazy!

As for me, I haven't felt this good since before I was diagnosed. I will not miss another dose again. I had missed once and had symptoms return that night so now that I am back on track and feeling good, I will stay the course. I am not going to tell you how much chocolate and carmel I have been eating. OMG! Normally, just the looking at the bag would send me to the ER, LOL

I hope you find something to help you. I think there is something to this probiotic thing. I am considering adding a third probiotic just to experiment. Who knows, right?

Best of luck to you Habs!

Hey pmedic...yeah I would love to find a probiotic since I have heard so many good stories.  I really do envy you (in a good way) the new outlook on life and enjoying food.  Keep up the good life!

Gumby...I do think I am still in a flare since last October...problem is all my scopes and tests show either no inflammation or limited inflammation in gastro instead of usual TI.  The area with the most problems physically shows the least issues on all tests (hey does that sound familiar!?!?!).  I still think I have some sort of infection.  GP and GI both insist "they are sure I don't have cdiff" and won't test for it despite my explanation of that I smell like I went bad in the fridge.  But the antibiotics helped in the 10 day stint.  I don't know what to say to get them to pay attention to this.  I guess I will get graphic and explain the consistency, color, constancy, (s)cent and cramping - the 5-Cs of the potty world!!!  GI last call said that "he wanted to avoid the next step of prednisone again"....hey how about the antibiotics again.  Geesh...is every pill they try now limited to a 10day supply???  Sorry...went off the rails to rant there for a minute.....I don't even mention stress to them any more as they love to use that as a way to brush things off.  I know stress does not help...but surely it is not the complete cause of the bad odor, big gas and general malaise.

I just had a thought...I am going to wait and see if things are better after a week off the probiotics (really just a rose colored wish).  But, am wondering can a ppi cause this too????  Seems to have gotten worse since I started the lansoprazole.  Off to research this on my lunch later today.

Thanks guys!!!

 

Hi Habs,
I really think you should try to insist on stool studies. When I had c.diff, it started with a partial obstruction and Crohn's flare. I was on Prednisone and getting sicker and sicker, but I wasn't having massive D or anything. I either had no appetite or was nauseous all the time. I finally felt so sick that I went to my doc and told him I felt like I was dying. He put me in the hospital and they finally did a stool study and found the c.difficile. My GI said he never had someone with c.diff who didn't have major D, which is why he didn't test for it in the first place. It took two rounds of Flagyl but I finally got better.
BTW, he now doesn't want to give me Prednisone because he says Prednisone doesn't seem to work for me. That comment drove me nuts because I think the Pred didn't work before because I had c.diff, and now I'm having what I think is a Crohn's flare, so he's not making sense. Sorry to go off on my stuff.....but my point is that bacterial overgrowth is common with ileal Crohn's disease. Beg and plead for the stool studies. If it's negative you can move on, but you should know what's up.

OK you guys give me the strength to get what I need! I am going to call my GI next week (too late to call this week). I am going to tell him all the smelly symptoms and that I think the antibiotics were a big hint that something is rotten in Denmark (my new nickname for my tushy!! sorry Denmark folks if we have any!)