WEIGH 80LBS AND HAVEN'T GAINED ALWAYS IN PAIN AND DEPRESSION... Please i need help, anybody....

Welcome!  I'm sorry you're not feeling well.  Are you getting treated for your Crohn's?  Just know that you're not alone in this journey.  Maybe some more info on your treatment plan and others may be able to help you a little more.

Hang in there!

Can you make it to the ER? They may be able to start you out on a more aggressive plan to target your Crohns symptoms.

When I first was diagnosed with Crohns, I was in a lot of pain as well. It takes some time for the doctors to get you on track. But they will find some medication that works for you.

You need to take time to read about bowel disease. I'm sure there is a book on Crohns at the book store or library. After that I would recommend some sort of diet.

There are many things you eat that hurt you. I can't eat nuts (especially peanuts), or any stingy vegetables like squash or asparagus. Those foods are just too dense.

Also look into food allergies. Gluten, lactose, starch, etc. try eliminating foods that make you feel bad.

I was on steroids for the first year and a half until the Imuran took over and started working.

I found Medical Marihauna and the SCDiet works best for me. Have gotten the crummy disease about 95% under control.

I hope you find the right path for you!

Were your three treatments initial doses?  If so, it can take some time for Remicade to get in your system when you are flaring bad.  I would definitely try to get your pain under control until you start feeling better.  Don't give up!  I've been in your shoes and now I'm in remission.  I've been diagnosed for almost 15 yrs... you got this!

LEAHXO said...
Tomorrow im thinking of going to the ER, Its only cause my aunt went at the age of 22yrs old for a different health concern and never made it back out... Really to be honest a permanent break from this pain... Would be lovely...

Where is your Crohn's located? Colon or small bowel?

'Cos honestly I'm already thinking surgery. Entocort hasn't worked for you, nor Remicade, which normally starts working somewhere between the 2nd and 3rd infusion. That said, there's always exceptions to every rule and I certainly would not recommend stopping the Remicade just yet.

But if you have a bad stricture, a simple resection will get rid of the pain, truly. Strictureplasty can be used for several, short strictures throughout the small bowel.

You can go on strong painkillers or smoke a certain unnameable drug for the pain, but it's so much better to treat the source of the pain if you can. In Crohn's that often means surgery. It would suck if you needed it so early in your Crohn's career, but there have been a few cases of people having surgery shortly after diagnosis (or being diagnosed with Crohn's after emergency surgery) and then going into remission for 20 years.

You may need to push your doctors. Again, this sucks if you are not the pushy type, but I found out the hard way you cannot rely on doctors to act in your best interest. Most GIs for example will not recommend surgery of their own accord. Maybe some do, but not any that I've ever met: I had break down and tell my GI that I wanted surgery before we finally had a discussion about surgery.

It may sound too early to be mentioning surgery and maybe it is. But Remicade is currently the best drug on the market for Crohn's; once that fails I tend to stop being optimistic that meds will work to be quite honest.

If you do go to ER, which does not sound like a bad idea at this point, I wish you the very best of luck. If you get admitted, the docs can put you on morphine and iv steroids and as an inpatient you will get access to tests much quicker than as an outpatient.