Perianal chron's

Hello all. I have been looking at this forum for almost two years. I will try to not make this long. Two years ago in July I started experiencing terrible pain about two hours after a bm. For six months I was diagnosed with hemmies. Finally I was referred to a surgeon and he diagnosed me with a fissure. We tried creams for about three months and no improvement. I finally decided to have the LIS surgery. He also said if there were any hemmies he would remove them as well. Surgery was in February 2012. I have never experienced the fissure pain since that day. However, I have never completely healed.

I had my surgery done by a general surgeon but was told by many people he was great. He wS a wonderful man. Very. Nice and compassionate. He had also had both types of surgeries himself. he hAd even performed this surgery on the president of the hospital I went to. I had never really even heard of a CRS. I live in a small rural area and there aren't many options anyway. To make a long story short, I am now going to a CRS. I have had blood tests, colonoscopy, cat scan and the Prometheus blood work. Everything had come back fine with the exception of an "inconclusive" Prometheus test. The doctor says he feels like it is chron's in the rectal area only.

My fissure was at the twelve o' clock area and the hemmies were at the 12, 6 and 9 area. I feel mostly healed everywhere except the 9 o'clock area. I have an ulceration and friability in that area. I have also been bleeding for the past year. Not tremendous amounts though. I have tried Prednisone, Flagyl and cipro. I am currently on lialda and canas supp. I have been taking the lialda since March and the canasa for about a month. I had started feeling much better but for the last three weeks or so I have been experiencing more pain and bleeding. I have been told I have no abscess or fistulas.

My daily routine is a morning bm. I have to put toilet paper there to catch this brownish liquid that I have a few minutes after a bm. This is about quarter sized on the toilet paper. Then approximately three hours later I have to wipe again as there is fecal residue. I have pain and also have some yellowish discharge. This was the reason for the antibiotics earlier.

This is completely wearing me out. I have always been very active and I have now become a complete couch potato after work and on the weekends. I had been exercising for years before this and now I just have no desire. My life has completely changed. I feel so guilty as I have it much better than many. I do not have any stomach issues, no diarrhea, no problems with many bm's a day. Only an ulceration that seems to not want to heal. I go back to the dr in late September and he says if no improvement we can try entocort. He said if that didn't help then we could try remicade which scares me to death.

I guess I am just looking for support and any suggestions from those with similar symptoms. Sorry for the extremely long post. Thoughts and prayers to all who suffer this disease and any other for that matter.

By the way, i am a 43 year old female. I have been married to my high school sweetheart for 27 years and we have a 26 year old daughter who is getting married in two weeks. We also have a 15 year old son who will be 16 in a month. He is much more excited about that than we are :)

Hi and welcome.  I guess I would ask if it was certain that what you had removed was hemmies or were they perianal tags.  If pb4 comes along...she can tell the story better than I, but basically, most of us are told to NEVER have tags removed becasue we don't heal completely.  I live with large and numerous tags.  They are both a literal and figurative pain in the butt.  Most GIs and colo-rectal surgeoons have told me the tags are a barometer of how bad/well we are doing---bigger inflammation in the tags...not so good.

JaSanne has me going to look for that lanolin to try!  JaSanne have you looked into cholestyramine---I only ask as I had the acid issues with no gallbladded and post resection--I love the stuff but it is not for everyone.

I agree on the squirt bottle and limited wiping.  I love my hand held shower and hop in whenever possible to avoid wiping.  I also recommend you try a sitz bath and soak regularly in warm water.  I gave up on baby wipes because even the most gentle with no alcohol were too tough---I think I try to hard to be clean and it might not be the wipes whole fault.  I was told I could use OTC cortisone cream to relieve some of the tushy, but have since given up on it---I still like my Neosporin with pain killer for those really stinging days.  Doc gave me a script for a tube of lidocaine wi=hich might help you.

Hope you heal more and get to feeling better.  My recommendation for brides and moms of brides that have CD is get a good pair of thigh his or go hoseless...it made my wedding day so much easier in that fancy dress!  Enjoy that special day with your daughter!!

Sorry that you are suffering. Agree w JaSanne and Habs. I have anal fissures that won't ever heal no matter what creams and meds I try. I have a recurrent anal abscess which both my GI and colorectal surgeon insist on not lancing.
Try sitz baths and the hand-held shower.
I just wanted to comment on something else you mentioned your doctor told you. He intends to put you on Entocort. Entocort is only intended for the last part of the intestines (TI) and the beginning of the colon. As far as I understood. you don't have issues w either your small intestines or colon, so taking this med is useless. I have ileocolitis and am on this med. It helps my intestines but my colon is very inflamed and is not under control. Discuss this point w your doctor when you see him.
Hope you feel better soon :) Keep us posted.