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Crohn's and vit D deficiency

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Crohn's Disease
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Posted 9/22/2013 12:50 AM (GMT 0)
I have been posting about how my doctors where failling me.  I have had Crohn's since I was 21 years old, and I am now 53yrs old.  I have been on Remicade for 6 years and I thought it had gone to my joints.  I have been in pain for one entire year with pcp and gi docs telling me to go back and forth.  My insurance did not cover me to see a Rheumatologist, but my pcp finally got me in for one visit.  All my joints, muscles,with spasms, off balance, mental health issues are just killing me.  They sent me to a Chiropractor, PT, and ortho doctor.  Now I feel that I am losing my mind.  The Rheumatologist said he thinks I am Vit D deficient.  I am hoping that is what it is so I stop this pain.  They think because my Crohn's causes me not to absorb vit d.  Has anyone know or had this happen to them.  I sure can use some support for this problem.  Thanks
Posted 9/22/2013 1:36 AM (GMT 0)
I have Crohn's and a vitamin D deficiency. But, it's not unusual for healthy people to be deficient in vitamin D. We usually use sunscreen and that blocks the D from being absorbed through our skin. A vitamin D deficiency can cause more pain. I live in sunny Florida and am out in my pool a lot but was deficient in D. I take 5,500 IU a day of vitamin D3.

A magnesium deficiency can do the same thing...cause pain...and it is estimated that most people at deficient in this also. I take magnesium malate because it's the most easily absorbed and is less likely to cause diarrhea. This hasn't bothered me at all.

Google Vitamin D and also magnesium. You will see what I'm talking about. I am a mod in the fibromyalgia forum and you can go to the fibromyalgia forum and go into Fibro 101 which is the first thread on the forum. Scan down and you will find links about vitamin D3 and malic acid/magnesium supplements (the same as magnesium malate). In the links you will find good info and also how these work in your body. I hope this helps you.

Sherrine
Posted 9/22/2013 9:34 AM (GMT 0)
Here is some controversial information about low vit. D Levels in autoimmune diseases: http://mpkb.org/home/patients/pathogenesis_overview
I thought you may be interested in this approach.
Posted 9/22/2013 2:04 PM (GMT 0)
Thank you so much, I just want to feel better.
Posted 9/22/2013 2:55 PM (GMT 0)
We all want to feel better and these have helped me and others. Do check out these things. I have Crohns and several other illnesses that these vitamins and nutrients help.

Below are some possible side effects of Remicade that you might find interesting.

http://www.drugs.com/sfx/remicade-side-effects.html

Sherrine
Posted 10/1/2013 3:01 PM (GMT 0)
I have RA for many years and have recently found out that I have a lot of food allergies. When I stopped eating those foods, I have been feeling much better. Get checked and see if it helps your Crohn's.
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