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Crohn's Disease
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Posted 12/10/2013 5:39 PM (GMT 0)
So the specialist today said he surgeoun sent over very little of use to him. There are the 8 pics he got of the colonoscopy before he quit saying there was a bump he couldn't get around.

The GI said he could have used a pediatric scope and it just looked like a tight corner, that I definitely had colitis but it was pretty mild and clean with just a bit of mucous, and that what the surgeon said were fissures didn't really loo like fissures to him. AND he actually paid attention to the fact that at the beginning of all this my husband had diarrhea and abdominal pain for 2 days, said he'd like to do biopsy for amoeba and anaerobic bacteria....that the last stool culture was pointless cuz I had just started the antibiotics and they dont always show up that way anyway. It just showed my good bacteria was low. He didn't want to give me pred until he felt confident it is definitely IBD so......back to a colonoscopy Friday. : (

On one hand maybe this will be good news....on the other odds are it is just making me wait longer for treatment. He told me keep going with the Lialdia as it wont hurt, and game me more hydrocodone so I can function until we know more.

*sigh*

On a side note, started intro SCD yesterday....
Posted 12/10/2013 7:46 PM (GMT 0)
WOW starting SCD without a firm IBD Dx, sounds like me.

Well I sure hope you do not have IBD but rather something that can be cured with a few pills.

The bad news is SCD requires tons of learning at the beginning, the good news is there are lots of folks that will very actively support you. You are not alone on your SCD journey. Please join the SCD Yahoo group. You will get almost immediate answers to virtually any question you ask. Of course I am happy to help in any way I can.

I hope you find a healing path quickly

Dave
Posted 12/10/2013 8:10 PM (GMT 0)
Yeah, I'm a motivated action taker. Though my hubby just bought chocolate hazelnut spread for some reason thinking I was allowed to eat it...Now I have to watch them eat one of my favorite indulgences in the universe while I eat chicken broth (I was a vegetarian a week ago). But I figure if it is one on these tricky bugs he was telling me about, it will help, and if it's IBD it will help....so surely I can' go wrong if I just give it a good go.
Posted 12/10/2013 11:08 PM (GMT 0)
You can not go wrong. It is a highly nutritious healing diet.
If it is a "tricky" bug, you may need to go low carb/low fodmap as well.
Your body will not have the enzymes to break down meat, so you will need to go a bit slow on that one.

At this stage you should not eat one thing that is not prepared by you. There are hidden illegals everywhere. Also, I suggest you do not eat out. I did not do so for at least the fist year. After 4 years traveling 3 to 4 days per week, I still almost never eat out.

There are lots of SCD approaches to almost any symptom. If you let me know perhaps I can help.

One last thing, the cravings will go away quickly. It takes about 2 to 3 weeks to detox, then it is no big deal. On ce you are healed there are great cakes, brownies, candy. But only after you are healed.

Healing thoughts being sent your way
Dave
Posted 12/11/2013 12:11 AM (GMT 0)
Yeah we usually do whole food anyway thought the last few weeks we dropped the ball a bit. I ordered the book but today I started with the chicken soup on pecanbread.com, eggs and carrots/ 100% unsweetrned carrot juice.

My worst symptom is lower abdominal pain, goes from bad to horrible when I have a bm, urge to go bm anywhere 5-8 times a day, even though I'm barely eating. Fatigue. Sometimes blood.
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