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How long can you stay on Entocort?

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Crohn's Disease
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Posted 3/3/2014 8:30 PM (GMT 0)
The entocort seemed to jsut start making me feel better at 3mg, then we dropped to 2mg (scripted at 3mg/day for 30 days, 2mg/day for 30 days, then 1mg/day for 30 days).  I know long term on pred is a no-no, but what about Entocort?

Since we dropped to 2mg, I am having absolutely horrid joint pain - I swore someone broke two of my fingers when I wasn't looking and my hip is telling me I am 88, not 48.  I am back to random gut grabs - you know that feeling taht there is an imp inside squeezing and pinching you.  I was able to get back to a whole packet of cholestyramine which makes me VERY happy.  I just want my "normal" back.

Posted 3/3/2014 9:57 PM (GMT 0)
I know when I was on it, it was for long-term maintenance much like asthma patients use Flovent or other steroids (somewhat non-systemic) as a maintenance med. That's not to say that the prescribing label recommends use long-term, but I know my prescribing doctor used it this way. I did get steroid side effects but nowhere near what prednisone does. The link will take you to the National Institutes of Health website that has the full prescribing information on most all US available drugs.

http://dailymed.nlm.nih.gov/dailymed/about.cfm
Posted 3/4/2014 1:05 PM (GMT 0)
I have already been on it for 2 years and this is my 3rd year. I can't live w/o it though I know it's a steroid and eventually I'll get steroids' side effects. With all this Entocort still my last colonoscopy showed ileitis.
Take care :)
Posted 3/4/2014 3:09 PM (GMT 0)
Hab, is there entocort 1mg? I've never heard about it? I definitely need to get it esp. when I'm tapering it.
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