Myrne said...
Thanks Datawraith! I definitely needed to gain some weight as well, I am 5'6" and was down to 110 lbs around my surgery - I am just surprised by how MUCH I'm gaining. In general, a healthy weight for me is 125-130 and now I am close to 140, which is probably the heaviest I've ever been, eek! I have started exercising some and watching what I eat, so hopefully things will get back to my normal weight.
I have tried Questran, but didn't find it too helpful. I may try again though. I am taking Lomotil every now and then, which does help, so I save it for specific outings or vacations. When did you have your surgery? Did they have to remove a lot? Are you still feelings better? I was on TPN and various daily pain meds leading up to my surgery, so even with the D I am still feeling much better. I hope it stays this way!
Hello Myrne,
I believe that your exercising will be beneficial for you all around, mentally, physically and emotionally. It will take some time to build up your endurance and reap the benefits of exercising, just remember that. I know people get frustrated rather easily when they're not seeing or feeling the results they want to see in a week.
Do you feel as though you had taken Questran long enough for it to help you out? It took a few weeks, a month for it to help me out.
I had my surgery in 1996 where the surgeons removed 17" of my small intestine, it was shown to have returned in 2012. The surgery was the best thing to ever happen to me, I felt like a new person.
I'm sure the Crohn's returned a few years earlier than 2012 but that had been the first visit to a GI in all those years.
I, like Question Everything, didn't take any meds for that whole time and continue, right now with no meds. My last visit with a GI a couple of years ago, he wanted to skip Humira and put me on Remicade. Thanks but no thanks.
I simply cannot see taking one medication to "help" with a disease to possibly cause one to many other problems, such as cancer. I view it as, since when is it OK to give people meds (a biologic in this case) that has the potential to cause death? They say the risk is minimal but there's a risk nevertheless.
I also feel that rather than find us a cure, we're made to be customers. Big pharma is in it for the money, they're businesses after all.
I know that may seem to come across as a negative view, it is and this coming from an eternal optimist but I'm also a realist. I've had the disease for 40 years now, been through a lot when it comes to the disease, been promised a lot too.
I am very glad to hear that you're feeling better, I too hope it stays that way.