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going back on pred

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Crohn's Disease
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Posted 7/16/2014 10:31 PM (GMT 0)
Do my first vedoluzimab infusion tomorrow. I. Just need something to hold till it kicks in. Pred The angel and the devil. Woke up today with back pain from hell. darn hospital bed. The pred should help that as well. I think a few days in my own bed will help. Good to be home but hospital did not really help. I am just so darn tired and week
Posted 7/16/2014 10:40 PM (GMT 0)
I'm so sorry that you're this sick. I feel the same about the pred and those awful hospital beds. I hope you can rest tonight and that your infusion goes well tomorrow. -Joy
Posted 7/18/2014 4:43 PM (GMT 0)
Ok just a few days on 40 mg and and I can't handle it. Talked to doc. Dropping to 20 for 2 days then stopping all together. The chest pains and crazyness are just too much. Just hope the Vedoluzimab kicks in quicker. 1 dose down this week. I can always jump back on the pred I guess if things go south but the stuff just makes my life hell and scares my kids
Posted 7/19/2014 6:54 PM (GMT 0)
Made it one day on 20 and blood came back and frequency. O well bring on the crazy I'm going back to 40. Those baseboards need cleaning and so do those ceiling fan blades
Posted 7/19/2014 11:06 PM (GMT 0)
Ask for Xanax to help you sleep. I won't go on Pred without xanax to go with it!
Posted 7/21/2014 2:36 AM (GMT 0)
I cleaned out the pantry today. Man it looks nice lol. I been sleeping ok. Like 7 hours straight. I just need to get my inflammation down. I am hoping to taper after like 7 days.
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