Bad pain in a new state

If your husband is active duty navy then I believe that there is a tricare policy that you must be able to receive an appointment within 30 days. You may have to contact tricare or a patient advocate at the base hospital. You should also file an ICE (that's what its called in the army) complaint about the base doctor for treating you the way they did.

Hey I feel u I just went to doc today for my narcotics but he was very understanding its about u an finding tht comfort where ever it may be. My whole ordeal has been me n misery found out 2009 wht I was dealing with ended up losing my Job an it was a very good job but set my whole hope for sum kind of relief back so here I am again 45 lbs lighter an sick as hell doin the whole jumpn frm med to med to appease my insur an I hav had my GI an my rheumatologist pulling for me to start injections but here I am sick as hell failing every med they try

Oh, that makes me mad to hear of someone being treated that way, but I've actually gotten that from my GI's nurse (she got full of herself when she became his office manager). I sometimes wish they could have just one day of what we go through regularly and see who begs for pain relief loudest!

I'm on a daily narcotic, but it's on the low side. I would love to not take anything, but the chronic pain is just that, chronic. My GP takes care of that part of my disease.

Is there any way to contact your former dr. for help, either for a referral or to call in something? My daughter was still using her dr.s at home via phone when she made a 1700 mile move, at least until she could get in to see a new specialist.

I tended to get flares about every time I moved. -Joy

Post Edited (JaSanne) : 8/7/2014 2:56:16 PM (GMT-6)

alyweld - I am sorry you are going through this. Crohn's is such a nasty disease and all that much harder to deal with when you have children to take care of. It is notoriously hard to get pain relief for Crohn's. Like scifigal2k said, GIs are hesitant to prescribe opioids because they do slow down your GI tract and that can be dangerous for people with IBD. Also, this is a chronic disease and you really need to decide for yourself how often you want to take pain medication that can quickly cause physical dependence and increased tolerance the longer you are on them.

That being said, I personally believe that pain medications are a god-send when In the middle of a horrible flare as long as you are proactively targeting the cause of pain (inflammation, scar tissue, fistula, etc.) with the idea that the pain meds are only short term until the actual cause gets taken care of. I was on Oxycontin and Percocet for about 3 months straight before, during, and after my surgery last summer, and I had to wean off the drugs after surgery and even then experienced some withdrawal for a few days. Before that, my GI would give me tramadol as needed that I took sporadically. The heavy duty stuff was prescribed by my surgeon.

If you try another GI, they will probably want to run a bunch of tests, you can ask for something for the pain in the mean time. The worst they can say is no. Once you find out what is causing all this pain, hopefully you can get started on a regime that makes you feel better. In the mean time, you may want to try a liquid diet. If it is pain from Crohn's, most likely it is pain cause by food struggling to move through restricted intestines, so if you limit solid foods this may decrease that pain. This is obviously not a long term fix, but may give you some relief. Good luck to you, I feel your pain!