Posted 9/10/2014 4:49 PM (GMT 0)
Diagnosed at 4, am now 23; been great up until about a year ago. hardcore gym goer (bodybuilding) and avid healthy eater
I am on cimzia (month 4, MAYBE 5 max). i have a stricture in my ileum (just under belly button). i was doing worst before cimzia, i had diarrhea about 4 times a day and couldn't eat too much;i had pain although no vomiting or blood or any of that.
NOW (typical day)- i wake up in the morning and have one bowel movement which is formed however sometimes thin (which could be because of the stricture). i then eat a good breakfast and then will work out, followed by another meal. things feel great up until about 5-6pm where i start to feel a fullness in my ileum (just under bellybutton). it will pump up and then sometimes growl and then go back down, during this it does hurt a bit. i understand that its the stricture and that food is trying to get through. after a few hours it passes and i feel ok. my question is even though i really feel like i am in remission, the stricture has caused scarring which MAY NOT be able to open anymore. i do have another shot in 2 weeks and am hoping that it will help with the opening of the stricture. can anyone else relate to this, if so what helped them? i take vitamins, one shot glass size of aloe vera and cimzia.
symptoms in a nutshell- feel great in am, after eating throughout day food has trouble going through or accumulation throughout day. i have normal bowel movements which makes me feel even more that im in remission...although the stricture is still giving issues! i know if it could just open A BIT more i would be ok. OH! AND ALSO, i am afraid that i am not absorbing nutrients fully...this could just be in my head but just a fear... i know its not the most organized post but as soon as someone responds i will post again with a response and answer any questions on how i stayed 20 years strong or if you have any info for me. thank you.