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Crohn's Disease
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Posted 11/7/2014 1:44 AM (GMT 0)
I took myself off of all medications and tried the "do it myself route" with diet only, and it didn't work quite so well for me. I'm in the middle of a really bad flare and my GI threatened to admit me today when I finally went back to her. She has started me on an entire new combination of drugs I have never been on and I would like some tips, or things to look out for, and success with these drugs? I've looked at what all these medications do to your body, and thats what scared me away from taking meds to begin with- but these are 10 time worse!

Methotrexate 25 mg injections
Folic Acid 1mg
Entocort
Phenergan
Zofran
Amitriptyline 25mg( supposed to slow things down a bit?)
I'm waiting on the PA- and then I will be starting Enyvio (I'm not sure how this is administered yet)
Posted 11/7/2014 2:04 AM (GMT 0)
Metho and entocort are standard protocol and should help
Metho has side effects if you get them, nausea , hair loss fatigue. Most people don't but if you do stop and try something else
Entocort is a steroid read the description and possible side effects
It usually will control the disease and then you taper off.
Side effects can be bothersome but better than the crhns for me anyway.
Entyvio is now working for me and I am trying to get off pred and other drugs
Most of all stick with your diet it really helps just don't count on it to achieve remission but it will help the drugs to work and minimize the side effects or adverse reactions and you will be stronger for it anyway.
Give the drugs a chanceand hope you find something that works and is tolerable.
That's a big part of our struggle
Good luck
Posted 11/7/2014 3:24 PM (GMT 0)
The phenergan will help with any nausea you get from the methotrexate, but it will make you very drowsy. The Zofran is also an anti-emetic med and should help, but may give you dry mouth. Both of these are probably "use as needed" rather than "take daily," although the zofran might have instructions otherwise.
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