Blood test for humira antibodies

star1234

Regular Member

Joined : Sep 2006

Posts : 188

Posted 5/27/2015 8:54 PM (GMT 0)

hello again,

Has anyone has the Prometheus blood test done to check for antibodies to the humira? I was on humira and 6mp but had stopped the 6mp in February in anticipation of trying for a family in June. Well I picked up my labs yesterday and my inflammatory markets are up, I just was diagnosed with uveitis and I'm having skin issues that are also probably related to all this. All of my symptoms coincide with stopping the 6mp which is why I think it's related to that and not being on a high enough dose of humira. When I was on humira and 6mp I was in remission based on my colonoscopy and labs.

If you've had the test done, how does the pricing work? I've seen online that the test itself is approximately $2500 but people have been paying around $250 with insurance.

Every time things start looking like they're working, I get hit with something else. Crohn's is a jerk.

gypsyfp

Regular Member

Joined : Jan 2010

Posts : 451

Posted 5/28/2015 12:19 AM (GMT 0)

Hi!
I had the prometheus done in September 2012 to test for antibodies to remicade.
I had a very short lived abscess and a fever in August, which a round of disgusting cipro flagyl got rid of, plus so many hives on my arms and legs that my roommate thought I was going into anaphalaxis!
The nurse had to come to my house and take my blood, so $$$$$$$$$$$$$$$$$
Even though my GI ordered it, my insurance refused to cover the cost, which was around $5000.
My GI's office told me not to worry about it and fought it for me, which was nice! I hate fighting insurance companies. And so I never paid a dime for the test.
The test was negative and so I'm still on Remicade to this day.
I was later on prescribed 6mp, which was nasty for a long time, then worked, then made my hair fall out, which made me start taking folic acid, and then BOOM! Pregnant.
My OB was freaked out, but I was on 6mp for my entire first trimester and remicade the entire time.
The studies that say 6mp was class D for pregnancy are old, btws.
Baby is 6 months and super active and talkative!
I'm going in for my postpartum colonoscopy in 2 weeks. I'm dying to know what's going on under there.
I might have to go back on the 6mp afterwards. YUCK!

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