Posted 6/28/2015 4:39 PM (GMT 0)
Ya, that is the problem. I have been scoped, they can't find it. It is so frustrating. I am on my second specialist now. No one knows what to do with me. They tried the fake camera capsule on me and it got stuck (don't' worry it dissolves) but could not take the real one.
Flew to Vancouver for a double balloon endoscopy, came out of it and dr says, everything looks good? I have been getting worse since 2007 with this particular issue. It started with iron injections, now have iv iron and blood. I have asked for a bone marrow test but they say all the blood work indicates blood loss.
I don't look sick, I don't feel sick. I mean I have my flares but I can handle that. I do however have excess bile production. I take questran, some days it seems like there is a lot. Any connection? prob not.
I really just do not know what to do, where to turn? Is this the end for me? I will travel just about anywhere, but where do you go? Mayo clinic told me to consult with the dr I am with now, so I am doing what I am told. Mayo is more concerned about curing people not looking after a chronic condition. Funny how they refuse me but I get numerous email from them asking for money lol.