HealingWell
Search Close Search
☰

Clear colonoscopy with crohns?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/31/2015 8:11 PM (GMT 0)
I was diagnosed with UC earlier this year but recently had a colonoscopy that showed I am in "remission" however I'm still having the same symptoms as before and dr said he wants to do a CT enterography to rule out crohns or small bowel disease. How was your crohns diagnosed? And what kind of symptoms were you having? Was anyone diagnosed with UC first and then discovered it was indeed crohns?
Posted 8/3/2015 5:38 PM (GMT 0)
Hi Katie, and I'm sorry no one has answered your post.

I was diagnosed from my biopsies and the GI who did that scope actually said from looking at my colon he felt sure it wasn't Crohn's, though I had multiple patches of ulcerations. He said my ileum "looked good" via the scope, but the biopsies showed microscopic ulcerations, so yes, it can look okay to the eye and still show up in biopsies.

The first GI I went to thought I had UC. The second GI, the one I mentioned above, diagnosed Crohn's. The last GI I saw tried to change it back to UC even though I already had a fistula, saying I had a "backwash" in the ileum. The surgeon he referred me to who did my hemicolectomy said it was Crohn's and told me he had never seen fistulae with UC though I have no idea if that's always the case.

Post Edited (JaSanne) : 8/4/2015 6:24:14 AM (GMT-6)

Posted 8/3/2015 5:46 PM (GMT 0)
Thank you so much for your reply. I'm so ready to get some answers. I was not happy when my treatment was going to have to be infusions but I was glad I was finally going to get better but now infusions are at a standstill until we figure out what is really going on. Very frustrating!
Posted 8/3/2015 8:03 PM (GMT 0)
Diagnosed with UC for prob first 10 years and then Crohns. Never bothered as the treatment has been broadly the same ... And it can be hard to determine. I would only insist on clarity if perm surgery was on the cards ... And so far I'm holding that one off (just!).
Posted 8/4/2015 12:53 PM (GMT 0)
I agree with Duffle. When I had my colon surgery, though the surgeon felt sure I had CD from my history, he scoped me at the beginning of the surgery to determine whether he would be removing the entire colon for UC or only part of it for CD since the diseases are treated differently when it comes to surgery. Of course, this was my decision that we fully discussed before the surgery that if he determined it was UC during surgery, I would have a colectomy.
✚ New Topic ✚ Reply