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extreme vertigo

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Posted 9/10/2015 7:09 PM (GMT 0)
Hi Gang,
I woke up this morning with extreme dizziness.....it feels like I'm walking on a ship with high waves. I can focus my eyes and I don't have any neurological symptoms. I've been struggling with bad IBS all summer but today I'm having pretty bad D. I am seeing my PCP at 5:30 PM tonight and called my GI to ask for stool studies, so hopefully one of those two docs can help. I have no cold or sinus symptoms or ear pain. Has anyone had extreme dizziness with a Crohn's flare? When I've been anemic in the past I have fatigue and heart racing, not this weird dizziness. No nausea btw, but my GI system is a mess. Any ideas? Thanks
Posted 9/10/2015 9:19 PM (GMT 0)
The only time I had extreme vertigo was when I was on antibiotics for a long time for c. diff. and an abscess. It temporarily caused inner ear problems that eventualy went away. It was pretty awful, though. Even when I closed my eyes and was laying down in bed, it still felt like I was spinning. Does it happen more when you stand up? Could it be a blood pressure thing?
Posted 9/10/2015 9:43 PM (GMT 0)
I've never had extreme dizziness. I'm afraid I don't have any ideas what might be causing it either. I'd be surprised if it was connected to a Crohn's flare-up, but stranger things have probably happened. I hope you don't turn out to have c. diff - it's marginally better than active Crohn's, I suppose, but still pretty crappy.

Hope your PCP can help!
Posted 9/10/2015 11:36 PM (GMT 0)
Well I saw my internist and he ordered blood work and my GI ordered stool cultures, so we'll see what's up. The dizziness is worse when I try to walk around and better when I'm sitting still. It doesn't feel much like a blood pressure thing, but my doc didn't do much of an exam. He only looked in my ears and that's about it. I've been having increasing D as the day has gone on. He suspects a virus, Crohn's or c.diff. So, basically he doesn't know, but maybe I'll get better soon or figure out what's up. He gave me Antivert for the dizziness, so we'll see if that helps. Ugh! I really hate getting sick. I called off work for tomorrow and then I'll have the week-end at least to recover.
Posted 9/11/2015 12:03 AM (GMT 0)
So basically it could be anything: that sounds utterly typical. Hopefully the blood/stool tests will nail something more definite down and it can be treated.
Posted 9/11/2015 12:07 AM (GMT 0)
Yep, I'm hoping to wake up tomorrow and be magically better....it could happen if it is a virus....a girl can dream, eh?? I hate missing work, but oh well, life goes on.
Posted 9/11/2015 12:33 AM (GMT 0)
Oh gumby I feel for you. I had a similar thing happen about 2 years ago. I woke up one morning and I could not get out of bed, the vertigo was that bad. It was so much worse when I would get up and move around so I stayed in bed as much as I could. I went to my PCP and she guessed it was due to a virus, also gave me antivert which didn't really work. The vertigo lasted for about 3 weeks. I never saw my GI during this time but I was in the middle of a decent flare at the time so I can't say for sure that it wasn't at all related to the joys of Crohn's. I hope you get relief soon. I'm dealing with a new inner ear problem now, I've had slight hearing loss and a constant ringing in one ear. The ENT does not believe that it is at all related to Crohn's, he thinks I damaged a part of my cochlea during a flight. Although he said it should heal, he wants me back in 6 months to recheck my hearing because my symptoms are similar to those of acoustic neuroma. Anyway, let us know how your test results are.
Posted 9/11/2015 12:42 AM (GMT 0)

gumby44 said...
Yep, I'm hoping to wake up tomorrow and be magically better....it could happen if it is a virus....a girl can dream, eh?? I hate missing work, but oh well, life goes on.

Just go on a Netflix binge and put on a sad, croaky voice if your employer phones >_>.

*reads caia's post* Ouch. I hope it doesn't go on for 3 weeks.
Posted 9/11/2015 12:46 AM (GMT 0)
sorry caia....that sounds miserable.....I think I'l stay in denial, just for tonight.....I'm wanting it to disappear quickly!
Posted 9/14/2015 3:50 PM (GMT 0)
Gumby...I check in every few months just to see how some of the folks I miss are doing.  Hate to see this for you....but I have something for you to check.  I too have been having the woozy legs and my vision was off....gp had tested my blood for regular run...found my B12 was very low.  turns out this may be the cause of my headaches, tingling hands, exhaustion, wooziness and some other neuro issues...even some of my back and neck issues.  I have been reading a lot about B12 deficiency lately and Wow...of the "top 100" symptoms, I exhibit about 75.

Check on your B12 levels....

Posted 9/14/2015 6:07 PM (GMT 0)
Wow Habs,
It's wonderful to hear from you. I think of you often and hope you are doing ok. My blood work and stool cultures all came out normal, but they didn't check D or B-12, so maybe I'll ask at my next appointment. The dizziness has stopped, but I'm still having D. My GI thinks its a virus, so I'm trying to ride it out. So I guess it's not Crohn's or c.difficile, which is what I was worried about. If you feel up to it, write back and let me know how you've been, but if you aren't wanting to do that, it's ok too. Sending you hugs and good thoughts!
Posted 9/14/2015 7:14 PM (GMT 0)
Hi Gumby....thanks for the caring thoughts.  I am doing alright.  I am both very B12 and D deficient (despite taking 5000 iu D3 every day). I know being low on either one can increase depression or moodiness...I think it is true and I am hoping that getting more of each will help.  My biggest thing is I am hoping that the B12 injections help with my neck and back pain.  I ahve been concerned I was heading for another disk removal since PT was absolutely no help.  Giving it another month of injection to see where that is.  Really felt like I had a bad cold---and on a bumpy elevator until I get the shot...and after about two weeks post shot!  The gut is the gut....my diet got a little more limited in the past year, but I am generally stable with still certain I have infection issues that doctors do not want to treat.  But the stability is the main thing for me.

Today is a sad anniversary and I was glad to see a friendly name on the site---today is one year from when my sister passed away.  With that and still not done with my fathers cruddy estate issues from two years ago, I am thinking low B12 and D is only part of my problems.  But I have signed up to be a first responder for aiding those who need mental support at my office and I am trying to be a conduit for change in my club.  Helping others has been a great way to ease my own troubles.

I appreciate your thoughts...and I still check in every so often.  Hope you are feeling better!

Posted 9/14/2015 10:23 PM (GMT 0)
HABS!!!!!!!!!!! :) It's so great to "see" you!!! I am sorry things are still rough with your father's estate. And I am sorry about your anniversary. I am so glad you've found a way to help ease your sorrows. You're in my prayers.
Posted 9/15/2015 1:01 AM (GMT 0)

HabsHockeyFan said...
Gumby...I check in every few months just to see how some of the folks I miss are doing. Hate to see this for you....but I have something for you to check. I too have been having the woozy legs and my vision was off....gp had tested my blood for regular run...found my B12 was very low. turns out this may be the cause of my headaches, tingling hands, exhaustion, wooziness and some other neuro issues...even some of my back and neck issues. I have been reading a lot about B12 deficiency lately and Wow...of the "top 100" symptoms, I exhibit about 75.
Check on your B12 levels....

Hey Habs! Nice to see you again :) Definitely the tingling and numbness is the first signs of nerve damage from low B12. I too want send you my best wishes that things you're still having to deal with soon straighten out for you. Also so sorry about your sister's one yr anniversary, those are the worst ((HUGS))
Posted 9/15/2015 3:55 AM (GMT 0)
Erin,
I thought it was about a year since you lost your sister, but I didn't know the exact date. I can only imagine how hard this must be for you. Wish I was there in person to give you a big hug. Be kind to yourself. It takes a lot more than a year for most people to move past such a tragic loss.
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