Posted 10/27/2015 12:03 AM (GMT 0)
I totally get feeling depressed about all of this. I was doing pretty well with my health until about 3 months after I got married. Then I started flaring, got the abscess that turned into the RV fistula, got pancreatitis, was on a feeding tube, and got c. diff. a few times. 13 hospitalizations in my first 10 months of marriage! Then I got pregnant a couple of months later (surprise, the pill doesn't work for me!). The pregnancy went pretty well, but when my daughter was 3 months old, everything went crazy again. I was hospitalized 10 times from when she was 3-8 months old. Talk about depressing! There was a woman in my church group who was practically raising my daughter while my husband worked (he'd only been at this new job for about 6 months), and I was just stuck in the hospital: c. diff., abscess, pancreatitis, I went septic twice, influenza, you name it!
So I really, really totally get how frustrating and hard this is! For me, my faith helped a lot. I can share more about that if you want, but I get that not everyone wants that answer and I don't want to push it. :)
So by the time we started Remicade (which is supposed to help fistulae heal), we took out the seton but I kept getting c. diff., and it never closed. We stuck the seton back in for a year and half, and last year when I was healthy and in remission, we took it out again and tried a plug surgery to stimulate growth. Unfortunately, by that time, the skin around it had all healed, so it's a lot like a pierced ear. So now I just deal with it! It's really, honestly not that bad at all. The only time I notice it's there is if I try to hold back gas and it comes out my vagina instead, lol.
I know when it hurts and is there, it's hard to be able to relax about it. The decision I've come to about my health is this: I can't change it. It's there, and I'm just going to assume it's going to be this way the rest of my life. So I can either be depressed about it, or I can choose to be happy. Neither attitude will change the circumstances, so I'd rather just be happy. It's not easy some days, but that's what I try to hang onto.
You may also want to talk to your OB - it is super common to get postpartum depression, and people with hard conditions can also struggle with situational depression. There is NOTHING to be ashamed of or embarrassed about either (or both).