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Remicade injection rather than infusion?

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Crohn's Disease
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Posted 11/15/2015 1:19 AM (GMT 0)
My doctor wants me to start Remicade as a more long term therapy for my Crohn's. They said I would pick up a shot from the pharmacy I wouls administer at home. I tried reseaching Remicade and keep only seeing things about infusions, which would be an IV as a doctors as far as I understand. Is anyone familiar with this at home shot? Im curious how it differs from the infusion.
Posted 11/15/2015 5:17 AM (GMT 0)
That sounds like Humira, which is a biologic like Remicade is. You can't do Remicade as a shot, only an infusion.
Posted 11/16/2015 12:41 AM (GMT 0)
I agree, it sounds more like Humira or Cimzia. Remicade is always an infusion.
Posted 11/17/2015 5:00 AM (GMT 0)
Weird. I know for sure it is Remicade so I am wondering if the nurse thought she was talking about Humira. They are having me pick up a vial at CVS so I am still confused. I am asking the doctor for clarification because I definitely have to know what it going on to take time off work if necessary for infusions. It sounds like the infusions can really wear you out the first few days after it is done, is that correct? Should I plan to be kind of worthless the day or two after an infusion?
Posted 11/17/2015 6:34 AM (GMT 0)
your mileage may vary. i typically feel fine, but my usual rhythms are always disrupted in some way- take too long to fall asleep, wake up early, feeling restless, etc. usually just 1-2 of those for a day or so after. i always feel beat up.

anyway yeah, as others have said, that sounds like humira, not remicade. remicade needs to be mixed day-of so you'll never get a supply of it.
Posted 11/17/2015 2:00 PM (GMT 0)
It could be they are having you pick up the medication and bring it in for the infusion itself. I had an OB do that with a birth control shot. Most OBs have the shot in stock, but this one didn't. I had to take the script in early so they could order it to the pharmacy to be picked up the day of.

I would take the prescription to the pharmacy early and ask if they even have it in stock. It could be your dr's office doesn't keep the Remicade in the office?
Posted 11/20/2015 6:19 AM (GMT 0)
I bet they don't have it in stock. They seem like a really spread out set up offices. I found out the nurse was wrong, I wonder if she was thinking of Humira when she was talking to me. It is infusions a a facility. Thank you for that idea scifigal, I will definitely take the prescriotion in early.
Posted 11/20/2015 1:40 PM (GMT 0)
Just make sure they know you are NOT picking it up until the day of! It may even have to be a few hour beforehand. Just depends on if it's already mixed. Since I am such a hard stick and sometimes it takes over an hour to get the IV in, they have to wait to mix mine once the IV gets in since they only have an hour or so after it's mixed to start using it.
Posted 11/25/2015 5:02 AM (GMT 0)
Thanks!
Posted Yesterday 11:50 AM (GMT 0)
Your mileage may vary is very accurate. The stuff is great when it works, I had side effects. so I had to switch, Memory problems. Cimzia was worthless to me, those were shots. I had the surgery May of 13. I have a colonoscopy this week, first since 13.
Try to get it administered anywhere but a hospital. the cost is outrageous. at the GI's office it was A Lot cheaper.
---Get Remicare--- google it , if the program is still active saves money,

T
Posted 11/30/2015 3:57 AM (GMT 0)
The financial assistance program is still active, it's called remistart. They increased the yearly benefit to $10k with a $5 co-pay.
Posted 11/30/2015 6:28 AM (GMT 0)
I always have to pay a lot more then $5. Probably depends on your insurance.
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