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Hair loss with Remicade

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Posted 1/10/2016 9:44 PM (GMT 0)
Had anyone on Remicade experienced hair loss?
Posted 1/10/2016 10:06 PM (GMT 0)
Over the years several members receiving Remicade have had difficulty with hair loss. Back in the beginning when Remicade first came out, hair loss was NOT listed as a side effect on the prescribing and patient information from the manufacturer. Now it is listed on that information.
Posted 1/10/2016 10:37 PM (GMT 0)
Thank you for the reply. I've had 5 infusions and I feel I'm losing a considerable amount of hair (not noticeable to anyone else yet). I do take Folate & wondered if anyone else has this side effect & if there is anything that can be done to stop it.
Posted 1/10/2016 11:40 PM (GMT 0)
How much folate are you taking? I notice you are on methotrexate. That is likely contributing. MTX really zaps folic acid out of the body. I also would add B-12 or Biotin.
Posted 1/11/2016 2:46 AM (GMT 0)
I agree with @Ides on supplements. I got pretty sick with other things around the time I started Remicade and lost a ton of hair overall. I'm not sure exactly what it was from, but since then my hair is not nearly as thick as it used to be (and it's been almost 4 years), and randomly, my arm hair is almost non-existent. (Why couldn't my leg hair kindly do that, too?!)
Posted 1/11/2016 6:07 AM (GMT 0)
I thought I lost a lot of hair due to it... Then I changed to humira, hair came back ... So when it next fell out I thought it was due to osteo drugs (so stopped them and it came back). Third time it happened I had no drug change. I only then realised the common factor had actually been anaemia. Just a thought ... Worth checking. Now I know when I'm anaemic by hair starts to go... Or vice a versa, when my hair falls out I need blood!
Posted 1/11/2016 4:10 PM (GMT 0)
I am no longer on Methroxate due to running a fever when I took it. Doctor took me off after about 6 weeks. I take 400 mcg/day of folate. After reading above post I too notice I barely have arm hair. I guess I just really want to know how much hair I will lose. Will my scalp show? Etc. My initial reaction was "I'm getting off of this stuff". But after reading many posts I realize that losing hair is better than losing my life. I was put on Remicade after a very serious flare & I got my life back. I will talk to my doctor & ask if there are supplements that can help reduce the amount of hair loss. Thank you for this forum! Sometimes it's very comforting just to be able to read some of the suggestions others have since they are going through the same issues. Blessings to all!!
Posted 1/11/2016 11:47 PM (GMT 0)
remiacde does not causing the hair loss. When we suffer inflammation about 90 days later our hair starts to fall out
My GI at a prominent IBD center said most of his patients lose hair and end up blaming it on their meds. the reason why hair loss is listed as a side effect of remicade is that when patients report side effects they need to list it.
correlation does not equal causation!
look up telogen hair loss in ibd patients
Posted 1/12/2016 2:26 PM (GMT 0)
Thanks Dikid. I will look that up.
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